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Do you experience any unexpected symptoms?

What is an unexpected Crohn's or UC symptom that you have experienced or are experiencing, and how do you manage it?

  1. Hi Pam. Inexperience very painful erythema nodosum and arthritic pain in my joints that come and go but sometimes the pain of both of those conditions is unbearable 😢 it’s been a struggle I never would of imagined before suffering with this. I have a 3 year old and a 5 year old too so I feel tremendous guilt for often not feeling well and my husband having to step in and cover me regularly now. I often just go to the bathroom to cry because I don’t want my kids to see me struggle or see me upset. Anyway sorry I’m going off on a tangent..

    1. Thank you so much Julie Marie, I really needed to read this and feel this support right now. You have really comforted me and made me feel stronger again even though I’m feeling so weak right now. You’re an angel. Thank you 🙏❤️

    2. my pleasure! From one IBD Mama to another--you got this!


      --Julie (Team Member)

  2. I have osteoporosis from steroids. I take Reclast infusions. Severe dry eyes. Arthritis all along my spine. SI joint involvement. I'm on Tramadol as needed. Just got started on Celebrex to take as needed because I can't deal with the neck pain anymore. I will take it rarely. Just finished 2 months of PT. Joint pain random places.

    1. , it sounds like you have a lot on your plate and my heart goes out to you. How has Celebrex been working for you so far and did you find that PT benefitted you as well? Thanks for chiming into the conversation! Kindly, Crystal (IBD team)

  3. Physical therapy definitely helps but it only lasted for about 6 months. Celebrex helps too but I am scared to use it regularly as it can really irritate my GI system.

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