Looking for answers
Wondering if anyone has a similar story.Thank you! Currently suffering like no other. GI issues for years thought it was ibs. The last 2 years horrible joint pain , positive ana marker, doctor after doctor came up short because i look and act healthy ( 34- athletic built) all the while same on off GI stuff. Recently for the past 3 months woke up nauseated every morning and had spells through the day, felt full easy, burning and swollen upper abdomin. Blood work showed high H pylori.... treated for that which only helped a little with the upper burning everything else continued. Finishd antibodics (which have always hurt me) tested negative but now everything is worse... pockets of horrible pain the same pin pointed spots through my stomach- but the worst is my lower right abdomen all day pulsating cramping and aching. No appetite like zero, I am wasting away. Found blister like sores on my elbow and a few fingers, my eyes feel swollen and now my ribs hurt. I can barely pass anything remotely soild now...
Currently waiting for a scope from both ends on the 24th. At this point I just answers. Appreciate you. Thank you if you read this far
First of all, I'm sorry you're going through all this. I have Crohn's and have had similar symptoms but some that I haven't. At this point, I understand it is very frustrating. I was very athletic and had an athletic build, but wasted away (170 lbs to 115 lbs) at my worst. I never felt like eating because of the pain it caused.
I think having the scopes is the best way to get a proper diagnosis and even though they are still weeks away, I hope you get the answer you need to help.
Many of us feel your pain and understand.
Let us know how you get on.
Vern - IBD Team Member
Definitely get the scopes and biopsies done with it. Ask to be tested for Crohn's. I am so sorry you are going through this. In the meantime be mindful with diet. Here is a link to diagnostic testing for IBD: https://inflammatoryboweldisease.net/diagnostic-tests-and-procedures
-Elizabeth (team member)
