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Hi, I recently had an endoscopy my fourth one since 2019. This time they examined the small bowel, which confirmed Crohn's. I've been put on antibiotics for two weeks, I've got to have an MRI they say 🤷🏻‍♀️ lots of booklets to read, I've also got under active thyroid I take 250 mg a day.
Is there anyone that got any information/advice please, I work but I'm struggling 🤦🏻‍♀️ don't know what adjustments work can provide, I'm clueless.
Thankyou in advance xx

  1. You are in the right place! We support each other with truth and a sense of humor. Your MRI is not unusual. It’s not surprising that your thyroid is under active. It’s like our entire body is a little weird. My biggest advice to you is to remember it’s different for everyone. So reading war stories doesn’t mean the same will happen to you. You’re a new diagnosed person. Medicine is way more advanced than when I and some others were diagnosed. You need to be kind to yourself and fight the illness, not with it. Fighting with it is feeling sick and dragging yourself to the store. Fighting it is getting rest and ordering online from a grocery store. Mission accomplished but your saving energy. You’re in my 🙏🏽!!

    1. I'm right there with you. I was diagnosed at age 19 with UC, and that was 35 years ago! Like you, I love advocating for others struggling with IBD because for so many years I was ashamed of it. Why? I didn't cause this disease, and I definitely didn't ask for it. But, still, I was embarrassed by the symptoms and even embarrassed to ask for help. So, I do my best to advocate for those who might feel like I once did. We all need help lifting up one another. So, I'm happy doing that right along with you. Thank you for your positivity and for shining that light to others. I hope you have a super weekend! Hugs--Traci (UC-IBD Team Member)

    2. Exactly how I felt! I was ashamed and felt weak and dirty sometimes! Thank God we have survived and can ease the suffering of someone else! Hugs to you and have a very Blessed Weekend!

  2. Hi . Getting the diagnosis and influx of information can certainly be overwhelming. This article from our editorial team compiled thoughts from some of our patient leaders for the newly diagnosed: https://inflammatoryboweldisease.net/living/advice-newly-diagnosed. In addition, this article from Kelly J. offers some tips (note: there is link to part 2 at the bottom): https://inflammatoryboweldisease.net/living/hints-newly-diagnosed. Concerning work, this article from our editorial team discusses accommodations and workplace rights: https://inflammatoryboweldisease.net/resources-work.
    The next thing I want to note is that plenty of people here have been where you are and this community is here for you. Please feel free, if you like, to keep us posted on how you are doing and to ask questions. Best, Richard (Team Member)

    1. Take your medicine. You never know when you're going to have a flare up and you never know where it will be! Hang in there!

      1. Choose your diet well

        1. diet can definitely make a big difference when it comes to managing an inflammatory bowel disease. Although diet and ways it impacts the gut can vary widely person to person, do you have any dietary tips that have been helpful for you? I'm also linking an article with information on nutrition and IBD for anyone interested in more information, https://inflammatoryboweldisease.net/living-with-cd/diet-and-nutrition. We appreciate you joining the conversation here. Wishing you a gentle day! -- Warmly, Christine (Team Member)

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