Newly diagnosis

Hi .
Mezalasine can take up to a month to begin easing symptoms, so not really abnormal to still feel unwell two weeks in. Some treatments can take up to 3 months! Also, treatment is very much trial and error, so you may need to try a few different ones before you notice any real improvement in your symptoms.
- Sahara (team member)

I was diagnosed in July. Got the same 8 week steroid medication but only 4 week's worth of mesalazine. After just 1 day I was cured (so I thought). I though after 4 week's I stopped the mesalazine and continued with steroids as this was the prescribed amount. I was very wrong. It immediately came back to the point I ended up in hospital. Now I have 8 weeks steroids and 8 weeks mesalazine. Again after just a day or 2 the symptoms are gone and I feel normal. I eat all sorts of different foods with no bad effects on me although I have cut down dramatically on alcohol and cut out spicy food altogether. I cannot say spicy food was a trigger but would seem a good idea to avoid.

Like you I am new to the condition and new to the forum but come here to read and learn from others as well as learn from my own experiences.

Would love to answer any questions even if I am inexperienced so far.

Also, I was wondering if anyone thinks that something they ate a lot of, drank a lot of or did a lot of earlier in life may have contributed to getting this condition as it seems to affect people randomly. Personally I put mine down to years of very hot spices and rediculous consumption of beers and carbonated drinks. Can't be proved but I think I destroyed my insides over the course of 20 years of the above.

I’m suffering with 3 diseases from last 10 years
1 crohns
2. GERD
3. By lateral AVN

Frankly after suffering from the sever crohns inflammations cramping, I thought the death was far better than i thought, as well as we know how sever the pain would be and I got multiple times hospitalised totally exhausted for weeks with a continuous inflammations,
I was on medications, the crohns was like off and on

Finally I guess the god showed me some mercy on me and I met one doctor he was giving me like a hybrid treatment with multiple combinations to treat answers he treated many crohns patients
Today I’m able to eat and drink few bears and able to eat spicy food and I’m under remission from last 4 years till date no Inflamariin only remisssion leadin a happy life but still a bit GERD issues sometimes worh 70% controllable die to tat hybrid medications

Coming to medicines I was taking 1 pill in morning before breakfast and 1 before before dinner from last 4 years
And chia basil seeds liquid , papaya and eggs in the breakfast.

I was permitted to drink but not smoke once in a week but I’m still cheating my self with my uncontrollable and taking one cigarette weekly once

This has become my routine and surviving successfully managing my diseases without any issues till day.

Let’s me know if you guys have issues
I can share my experience to you bcos I have 10 yrs exp lol 😂

Hi .

I am pleased to hear that you have found something that helps alleviate your symptoms, but it is important to note that everyone is different and what works for one may not work for another.

Any decision to come off or change treatment in any way should be dicussed with your IBD team first.

- Sahara (team member)