Purinethol for ulcerative colitis
Hello, my husband has moderate ulcerative colitis and has had several courses of steroids just this year to help with flare ups. His consultant today has offered to prescribe Purinethol as the next step for medication to help him into a remission.
We have been advised that it is a form of chemo medication and the biggest risk is cancer.
We are both very worried of the side effects of this drug and are wanting to get in touch with people who have been prescribed a drug like Purinethol to help fight their IBD flare up’s and what it was actually like taking this medication and if it’s worth the risk of the side effects.
Any stories or advise would be really appreciated.
Just to clarify my husband is in his late 20’s, had colitis now for roughly 4 years, and is on 2 types of suppositories and mazevant to help with his flare up’s with not much success.
thank you for sharing! I know how hard it is trying to figure out which treatments to try and balancing out the risks vs the benefits. While I do not have any personal experience with purinethol, I wanted to share this article from our site with some information about the medication https://inflammatoryboweldisease.net/treatment/medications/immunomodulators.
I hope others from our community will chime in with their own personal experience with the medication but everyone is so different and can react differently to treatments. I would try to discuss any concerns about the medication with your doctor if you haven't done so already. Sending thoughts your way! Warmly, Erin (team member)
