Rinvoq for Ulcerative Colitis
Has anyone started taking Rinvoq to manage UC?
I was also wondering if anyone here ever had any side effects?
I started taking this medication in May of this year (2022) that just became approved for use in UC patients. Rinvoq has been reported of causing skin conditions, including cancer; which never became a concern for me until I noticed these strange off colored spots on the left side of my back towards the middle. Shingles was ruled out when the spots didn’t get worse or get better. I also started experiencing intense pins and needles, tingling, numbness and itchy in my back, arms and hands. They put me on Gabapentin thinking it was neurological. It seems to be helping a lot but any day I have large gaps in time between pills the symptoms immediately return.
At this time it is still uncertain what the spots are or why I am experiencing any of these symptoms but I do have an appointment with a dermatologist in October. Anybody else have stories to share in regard to this? If you’ve been on any other biologic med like Entyvio or Stelara and you can relate, please feel free to share. Thanks!
Has anyone been on Entyvio? If so, for how long & how is it going?
I was on Entyvio on and off for a couple of years and it worked but only for a little while before I would come out of remission again. Biologics have never lasted long for me which is why I ended up having a total proctocolectomy in December 2021. Entyvio made me feel listless and tired all the time which did not help with depression. It also did not do any justice when it came to hair growth. I lost a good portion of my hair that just never seemed to grow back after.
I’ve read so many conflicting testimonials about it & don’t know what to believe.
there is no concrete answer, I'm afraid! I wrote about this in a previous blog on here: https://inflammatoryboweldisease.net/living/medication-advice
- Sahara (team member)
