I have had “IBS-d” since I was 22, and I am 52. It’s been so severe, I have been hospitalized many times (up to 73 days one year). I am so sick and weak that I went from a public school teacher to bedridden on disability. Last time I was hospitalized, lab results showed positive stool lactoferrin, high sed rate and CRP. I also had blood in my stool during my entire 2-week stay and “colitis” in CT report, with no positive tests for pathogens. However, since no colonoscopy (and I have had many over the past 15 years) has shown any very specific results, my diagnosis and treatment has always been IBS-d. That continued even after last April’s suggestive findings.
I have tried every single IBS med, and nothing works. I have begun losing weight now because I cannot eat for 15 minutes without urgent diarrhea. How do I approach this problem? Why hasn’t a doctor prescribed Budesonide for me, seeing as it’s pretty safe and might work? Why would I have had “colitis” along with stool lactoferrin if I don’t actually have IBD of some sort? Could it even be undiagnosed Crohn’s after more than a decade of symptoms? If so, could it be that the inflammation is hidden in the small intestine?