Just looking for some guidance and support.
IBD symptoms begin
I have an 18-month history of bowel problems. Aug 2019 I had my appendix removed but scans showed I may have the start of IBD, as my appendix didn’t show any abnormalities and when taken out no inflammation was detected.
I had ongoing symptoms of lower right abdominal pain, blood and mucus in stool, and generally unwell. January 2020 I had a colonoscopy which showed ulceration of the terminal ilium and was told I had a Crohn's disease bowel appearance - however, biopsies came back clear.
I had ongoing symptoms and trips to A&E, had a repeat colonoscopy in March before Covid, and was told there was nothing there!! Had ups and downs over the summer, it was either symptoms or no symptoms.
August 2020 I became very unwell and was taken into the hospital with suspected bowel instruction - I was in and out with just supposedly a viral infection - the second time I went in, they had done an abdominal X-ray and found thumb printing on the bowel and the CT showed extensive large bowel inflammation - started on steroids.
2 days later went back in with ongoing symptoms and excruciating pain. Had a stool culture to find that I had campylobacter - this was evident in the terminal ileum, the same place where ulcers were found in January.
Unclear IBD diagnosis
The consultant at the time suspected I have an underlying bowel disease but another consultant didn’t care and just discharged me. Ongoing consultations with doctors etc. I have been told on numerous occasions by many consultants that I have most likely got IBD, but no definitive answer.
Looking for advice really on the next steps. I’m from the UK!