Travelling with IBD

Travelling can be a source of anxiety at the best of times. Throw IBD into the mix and it’s a whole new ball game! I wanted to share some tips for travelling with IBD with you. Hopefully, it will ease any apprehension you may have.

When you’re deciding where to go, consider what vaccinations are needed. You might not be able to have them if they’re live. Also, consider what the toilet facilities are like and whether it’s realistic for you to manage.

Pre-travel preparation

I love a list. I think everyone should love lists... Starting a list early makes me feel like I can be totally prepared for every eventuality. I can start with the basics a few weeks before going away, and add to it as things pop into my mind as I go about my daily life.

I usually separate my packing list into things like clothing, toiletries, tech, and general health stuff, such as plasters and cold remedies. Then, there’s the additional health list: medications, stoma supplies, and oral rehydration solution. Being in the sun, additional activities, and alcohol can all increase dehydration risk, especially if you have absorption issues due to scarring or surgery. Sunscreen is always necessary, especially if you’re on certain medications such as azathioprine (Imuran).

If your medication needs to be refrigerated, you can store it in a cool wallet or small cool bag. You will also need to make sure that you have access to a refrigerator when you get there.

Packing and IBD medication considerations

Packing more than you think you'll need is always wise. It's better to have and not need than to need and not have! If you’re going abroad and you’ll be separated from your case, it's a good idea to split your medications and health supplies between cases, just in case anything gets lost in transit. You may be able to pop them in your hand luggage, but do check with the airline first, particularly if you use medications administered via syringe.

If you have IV infusions and you’re due treatment during your trip, you will need to arrange this in advance with a local IBD centre. Chat to your IBD team about the best way to go about this.

IBD accomodations in transit

If you’re travelling by air, enquire whether it’s possible to have an aisle seat located near a toilet for easy access if needed. Some airlines also allow an additional baggage allowance at no extra cost to accommodate for medical supplies too, so it’s worth an ask! If you’ll be provided with meals during the flight, let them know your dietary requirements. Many of the same considerations are applicable to coach journeys too, and you’ll need to make sure the coach actually has a toilet on it before you book!

You will also need to make sure that you have adequate travel insurance to cover your IBD before you go. And of course, a lot about travelling is unpredictable.

Worth bringing along on your journey

I know my body pretty well at this point, so I usually plan what and when I eat around my journey. If we drive anywhere, I check where the public toilets are on our route via Google maps.

You should get a letter from your prescribing doctor which includes details such as your name, travel info, and the medications you take and in what dosages. This will help if you run into any problems at customs.

You can also get a sunflower lanyard if needed. This makes airport staff aware, in participating countries, that the wearer has invisible needs, which may require additional support, help, or a little more time. Sunflower lanyards can be obtained at any of the airport’s assistance desks, or online.

On holiday: You made it!

If you’re travelling to a hotter climate, you will need to make a conscious effort to monitor your hydration levels. Warmer weather, doing more activities, alcohol consumption, etc. can all contribute to dehydration, especially if you’ve had certain surgeries or have malabsorption issues. Bottled water is the safest option, and you will need to think about that when it comes to everything from brushing your teeth to having ice in drinks.

Don’t forget your normal dietary requirements! It can be difficult, especially for those interested in trying lots of local cuisines, but it’s not worth ruining your vacation for.

Most importantly, though... Enjoy yourself!