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Living with no answers

I was diagnosed with Crohn’s-Colitis last year. I’ve had symptoms all my life, but they were always played off as being a picky eater. I would always end up in the washroom after eating and it became a running joke. Then I started getting worsening symptoms and after my gallbladder was removed, I was told I had Bile Salts diarrhea from not having a gallbladder, and IBS.
I kept having extreme pains, cramps, and had to be in areas where I knew where the washrooms were. Working was a nightmare but then I had open heart surgery and that’s when things got even worse.

Eventually it took me having an episode of bleeding to be seen by my GI Doctor who ordered a flex-sig scope. Then a full colonoscopy when those came back positive for inflammation. Then, diagnosed with Colitis. 2 weeks of hospitalization and I was upgraded to Crohn’s-Colitis due to my upper GI symptoms as well.

I failed Entyvio but now with Remicade, my symptoms have not disappeared but diminished enough that the pain isn’t as bad.

It’s taken a lot out of me, physically and mentally, as I have a lot of other health issues but I’m grateful to have an amazing Dr, GI Dr and team to help me. Having answers was a huge relief!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    7 months ago

    Thank you for sharing your story.

    I agree, it is a huge relief to have answers and know what is going on in your body so that you can take the appropriate steps to heal. It makes me happy that you are pleased with your doctors and it seems like you have the support in place to help you get better.

    I am wishing you the best and I hope you find complete relief from symptoms soon. Continue pressing on, warrior.

    Always dancing,
    Elizabeth (team member)

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