Skip to Accessibility Tools Skip to Content Skip to Footer

Living with Crohn’s and Managing Pain

I was diagnosed with UC about 2.5 years ago and then it eventually led to Crohn’s. How it became Crohn’s is when I had very painful fistula form. I couldn’t sit for more than two minutes, I couldn’t stand for more than five minutes. The only position that felt ok was when I was lying down, but how long can you live your life like that? Had an MRI and the doc just gave me antibiotics.

Excruciating pain and trips to the ER

Well that lasted one day since I woke up the next day in excruciating pain and ended up going to the ER. There the doctors said I’m going into surgery for a fistful and they were putting drains in me. After 10 days of recovery and losing 20 pounds I was back at work. Then about a month later I had an infection with a 103.4 temperature. Back to the ER I went and spent another three days in the hospital with yet another surgery.

The worst year of my life

Fast forward three months later, another fistula surgery. It was the worst year of my life. I missed so many things such as family outings, baseball games and concerts. For the events that I went to it was tough and I was in agony. Couldn’t enjoy it. The Crohn’s was under control for a few months while taking Entyvio but then the symptoms came back and just two weeks ago and you guessed it, had my fourth procedure for the same problem.

Trying to manage the chronic pain of Crohn’s

As everyone with Crohn’s knows, it is very painful. Through all this time I was trying different things to deal with the pain. They gave me OxyContin. I took a couple over time and I can see how it can be addicted. I wanted to stop taking that. Then I tried a small dose of CBD and it worked for a bit. Then a family member gave me marijuana in a vape form. It’s felt great but I needed something that would help me and let me function at work.

Managing pain with CBD

I went back to CBD and never turned back. CBD as with any supplement is not FDA approved so I can’t say it will help you and there is no endorsement of it anywhere. I was skeptical at first but now I’m hooked. Pain still comes and goes with Crohn’s and UC but for myself I found something that I can control it with. Onwards!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    4 months ago

    Thank you for sharing your story! And thank you for sharing what has worked for you and brought you relief!

    I hope you are continuing to do well these days. Keep us posted with your health. Rooting for you!

    Always dancing,
    Elizabeth (team member)

  • Kelly C (#purpleproject) moderator
    4 months ago

    Thank you so much for sharing your story and some of your background over the past few years!

    Fistulizing Crohn’s can be absolutely horried and really steal your quality of life very quickly.

    Thank you for sharing this with our community. We wish you continued success with your current regimen!
    Kelly, Team Member

  • Poll