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General Discussion

How has your IBD diagnosis affected your mood?

  • By SusanHU

    We hear from a lot of community members that being diagnosed with IBD has affected how they see the world – what do you think?

  • By kimsart

    Before being diagnosed with ulcerative colitis at Get 35 and finding out its chronic I was working full time and of course wife and mom of 2 boys and a dog. I was also working a second almost full-time job as a visual artist trying to break into public art commissions. But my career goals changed overnight. I had to keep my cable company job to have health insurance. I painted still and sold my art online till my younger son was diagnosed with a kidney condition. At that point dealing with my, illness, his and working were too much. I gave up painting.

    • By Meagan Heidelberg Moderator

      Hi @kimsart
      Thank you for commenting! We are so sorry that you’re unable to paint, as we hope you’re able to find the time between it all soon! Thinking of you and your son!
      Best – Meagan, Team Member

  • By cwhitfield

    My mood has gone through several stages. I was diagnosed in 1996 at the age of 16 and I didn’t care at all. All I knew was that I could resume football activities once my flare was over. As I got older and started a family I felt lonely. Not a single person around me could understand my misery and dealing with fistulas, diarrhea, pain and other symptoms meant that I would miss family activities. Now that I have sustained remission for a substantial amount of time and have become very educated with my condition I am anxious to help everybody even it’s only on the importance of maintaining your gut health.

    • By Meagan Heidelberg Moderator

      Thank you so much for reaching out! We are glad to hear you’re in remission right now. We appreciate your desire to help others learn gut health!
      Meagan, Team Member

  • By tohid

    Please tell me .I have the problem that I have to go toilet 3 hours after eating food

  • By Amanda Osowski Moderator

    Mood forsure, without a doubt is impacted by my disease activity. When I am symptomatic, it is harder for me to remain optimistic or positive! Talk therapy, medication for depression, and meditating have been incredibly beneficial to me.

  • By Brooke Abbott Moderator

    Between the pain, medication side affects, fatigue and anxiety my mood has definitely changed. I often feel like a mean mommy, because I can be snappy when I’m not feeling well and it’s just not fair to those around me. I try my best to work on my anxiety and depression to help with my moods.
    ( Team Member)

  • By Julie Marie Palumbo Moderator

    It is amazing how much my views and mood have fluctuated while dealing with CD, but in the end, I truly believe I have been given a chance to truly show, and see my inner strengths and happiness.

    I remember just before my surgery in 2014, I would use the expression that I was “a shell of myself” in that I lost the spark, happiness, and optimism I used to have prior to being chronically ill. Then, post surgery, I began to view my life as getting a second chance and choosing to be happy and optimistic because I KNEW things could be so much worse!

    Now, I see the world as a place of beauty that offers challenges and promises, and struggles & wins on a daily basis. I find myself grateful for being able to fully see the good and bad in life, and view the world through the scope of a wiser person after all that CD has taught me.

    ( Team Member)

  • By thedancingcrohnie Moderator

    Being diagnosed with Crohn’s Disease has absolutely changed how I see the world.

    When I was first diagnosed, I was young and honestly pushed it under the rug and just prayed things would magically get better. I was studying classical dance and had dreams of dancing professionally in New York City, and I was so upset that I suddenly had this disease standing in my way.

    Needless to say, I suffered a lot because I was in total denial and didn’t want to face the diagnosis. I was running away from a big problem, that only magnified with my neglect.

    Now that I have finally come to terms with it, and began to research on my own and be my own advocate, I am thriving. I only wish I would have done it sooner.

    Life is too short. You have to grab the bull by the horn sometimes.

    Now, I am so eager to share my experience with others and share what has worked for me to spread hope and hopefully keep others from suffering as long as I did. This disease is so personal and affects everyone so differently, which is why sharing is the best way to provide hope.

    Before, I would never speak about Crohn’s. Now I am a total open book.

    Wishing you all the best. Things will get better. Remember you aren’t alone in this.

    Always dancing,

  • By magsmom65

    This disease has affected me lots of ways… In the worst way I feel cheated, my body has betrayed me and still does. I was once a young, pretty, thin woman who spent her first years as a newlywed in the bathroom, and ultimately led to divorce.. My ex’s words.. “I don’t want a sick wife.”.. ouch..

    I still struggle with the low moods and the “why me?” but in other ways I realize I am strong and resilient. My son has gone into the medical profession because of what he saw me go through, wants to help people, and I couldn’t be prouder. He and his future wife, who is studying to be a nurse understand my struggles and are very supportive, which I never had before. I also realize that while I was going through this being pregnant I had a beautiful, healthy son and I love him to death.

    sometimes all I need is a good cry and then shrug my shoulders and say oh well, such is life. what can you do, it’s better than the alternative..

    • By Pam.Kingsland Keymaster

      You’re right, ‘ouch’. I’m sorry you went through that. But, I’m so happy to read that you have such a great support system around you now. It really makes all the difference! They sound like such a lovely couple 🙂 I hope you’ll continue to be such a warrior! Thank you for sharing with us and for being here. – Pam (team member)

  • By Jonbocking

    I would like to ask please
    I haven’t been diagnosed with IBD yet , My son has been diagnosed with it.
    I have another appointment at the Drs next week
    All the signs seem to indicate I have IBD
    But need to ask for some advice please
    Over last few weeks I have days were I have a solid movement, then a few days have diarrhea , mainly after eating
    I also have , tiredness , fatigue and feeling down
    Is this IBD ?

  • By thedancingcrohnie Moderator

    Hi @jonbocking,

    I am so sorry you are having these symptoms. I am not a doctor, and of course I can’t diagnose you but I’ll just share my opinion in the matter.

    I think you are being proactive and smart by going to the doctors to check out what these symptoms mean. If you aren’t going to a Gastroenterologist, I would recommend you see one that specializes in IBD so they can perform the necessary tests to diagnose you. Before I was diagnosed I waited until I saw blood in the toilet before I went to see a Gastroenterologist. I wish I was more proactive and saw a doctor much sooner. I did have the same symptoms you described however I also had bleeding.

    I hope you are able to get answers soon as to why you are having these symptoms. Stay proactive, and if a doctor dismisses your concern, get a second opinion.

    Wishing you the absolute best.

    Always dancing,
    Elizabeth (team member)

    • By Jonbocking

      Thank you for your kind words
      I’ll keep you posted

  • By ihatethis

    I have dealt with GAD (anxiety) since I was a teenager and thankfully didn’t have many symptoms until I was around 18 or so. It’s been about 15 years since I was DX’d.

    My mood is generally happy and positive but when symptoms arise I begin to worry if my CD is back and now that it has been for over 4 years now, my mood isn’t where it use to be.

    I still remain happy as much as I can but I’m tired of dealing with the same feeling. I began looking up the FODMAP diet and find it’s helping a bit. I think our mood gets greatly affected by our symptoms, and when chronic you start to feel down. It’s part of the journey but things will get better, eventually.