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Can I avoid Steroids in this instance?!

So Ive had Crohns Disease about 5 years now, and had a few courses of steroids throughout this time frame. I never got on very well with them, severe weight gain, low mood etc.

But I started Infliximab almost 2 years ago and it's been amazing, kept me pretty much symptom-free. Recently had my levels checked which were really good, bloods etc had all been tracking well.

And then when I was due my last infusion, I got Covid so ended up being 3 weeks late having the infusion. So technically had an 11 week gap in between my last 2 infusions. Because of this, I've ended up being quite unsettled. Bad guts, stomach cramps, loss of appetite some days and a bit of nausea.

I wouldn't call it a full on flare up but more just niggly but it's not fully settled after about a month or so now... Had my calprotectin checked and the results came back today confirming that the levels are way up compared to my last stool test (Over 300).

Nurse has asked for 1 or 2 more tests this week, but is suggesting I may need a course of steroids to get me back on track.

Is anyone aware of anything else I can try before having to resort to steroids??!?! I am really keen to avoid this option if possible.

I've heard of others before having a 6 week gap between infusions, rather than 8 week gap to help recover, or even having a slightly stronger dose a few times, just to help get things balanced out again.

Be interested to hear if anyone else has had this happen and how they resolved it....

Thanks ๐Ÿ˜Š

  1. CBD oil is amazing at lowering inflammation. I would look into it. I take it twice daily. -Elizabeth (team member)

    1. which one do you recommend? Thank you!

    2. I've used a two different ones and like both. I currently use one by the brand Nutritional Frontiers called "Full Spectrum Hemp Extract Oil" in the mint flavor. I get it from my Naturopathic Doctor. I have also bought one by Quick Silver Scientific. This I believe will be easier to purchase online. It is their Full Spectrum Hemp Extract. Both are small liquid bottles. You use a dropper. Of course please consult with your doctor before trying any new treatment. I wish you the best! -Elizabeth (team member)

  2. I have alergic reactions to steroids so i cant have them, always wonder what other med i could take ?

    1. Hi . There are now a number of medications for IBD and this article from our editorial team gives an overview: That said, I don't know what the alternative for fast acting treatment during a flare may be. Hopefully others will chime in with their thoughts. I do also want to share this article from Christal on her flare action plan: Has your doctor had any thoughts on alternatives? Best, Richard (Team Member)

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