caret icon Back to all discussions

Gluten and dairy free?

I was diagnosed with IBD over a year ago and have been told to go on a gluten and dairy free diet. I was wondering how effective this is? It’s been super hard to start lol. When I got diagnosed I was told by my GI that I could eat anything I wanted, but a lot of people I know with crohn’s eat gluten and dairy free…Should I just cut them both out at once or separately?

  1. Hi Claire! This is a great question. Unfortunately, the answer varies for all people. Personally, I eat both grains and dairy, and my illness is well managed by my Remicade/Inflectra infusions. However, I know others who prefer to manage with diet, or need to be more careful about what they eat, even with medications.

    My GI actually asked me to go dairy-free for a bit to see if I had any lactose intolerance. I wonder if you could ask for some testing to check if you have any food sensitivities or allergies as well? I also know some people have used a food diary to check and see what foods might be triggers. (More on that here: https://inflammatoryboweldisease.net/living/food-diary) It seems to me that trying out different diets and seeing what works for you might be a good idea! But going slowly might be the best way for you, since these big changes have been hard. You might even consider going to a nutritionist for support!


    Hope these thoughts help. I hope you'll share how your journey goes! -Eshani (IBD Team Member)

    1. Hi Claire. I think we all struggle with this question and as Eshani mentioned, it varies with all of us. I personally eat both wheat and dairy but with some restrictions. I discovered over time that I can eat white bread and things like oats with no problem, but whole wheat is a no-go. When it comes to dairy, I can't drink milk or anything with cream or most cheese, but I can eat yogurt and hard cheese (like marble cheese).
      If you want to cut out dairy and wheat, that is certainly your prerogative, but try eliminating dairy to see if that makes a difference and then maybe try eliminating dairy and keep track of your reactions if any.
      You could also go hardcore and eliminate both but then slowly reintroduce to see if there is a difference or reaction.
      With this disease, it's always trial and error. Good luck
      Let us know how you get on.
      Vern - IBD Team Member

      1. Hi . Both Eshani and Vern mentioned eliminating certain items and keeping track/a diary of your changes. To go along with this I want to share with you this article from another patient leader, Matt, on elimination diets: https://inflammatoryboweldisease.net/living/elimination-diets. Hope this information is helpful and please feel free to keep us posted on how you are doing and to ask additional questions. Best, Richard (Team Member)

        1. I've been adding more fermented stuff like kefir and sauerkraut to my meals, and it's really helped my digestion and energy. Way cheaper than supplements too.

          1. oh that's great! I know a lot of people find making dietary changes helpful, and those fermented foods have a good reputation (of course what works for one person won't necessarily be the same for another -- in fact we have an article about some diet "trends" with some of our community members responses to whether or not their bodies tolerate them. I'll share it here just in case you, or people reading this comment, are interested, https://inflammatoryboweldisease.net/answers/2024-food-trends.) I'm so glad to hear that you've found something that is helping with digestion and energy! And we appreciate you sharing your success with the rest of the community here. -- Warmly, Christine (Team Member)

          2. Hi . Just thought you might be interested in research that backs up what you found. This article notes that "fermented foods can contribute to the microbiota and intestinal mucosa because, in general, the nutrients and non-nutrient present in its food matrix become more accessible: https://www.sciencedirect.com/science/article/pii/S1756464622001438. In addition, here's a page from the University of Massachusetts Medical School verifying the potential value of fermented foods: https://www.umassmed.edu/nutrition/ibd/ibdaid/. Wishing you the best. Richard (Team Member)

        Please read our rules before posting.