Help !!! Need ur advice

Hi Sorry to hear you are still suffering.
From what you have said, after 3 weeks post hospitalization, I would contact your doctor or head to the hospital in my opinion.
What is concerning to me is the fact you have pain when eating still.
I hope you have relief soon.
Let us know how you get on.
Vern - IBD Team Member

Hi Keemo, I definitely agree that you should go back to the hospital or call a doctor! I am also wondering--they said it was inflammation and said it wasn't abnormal, right? But in all my experience, inflammation is considered abnormal and requires treatment. Did they have any kind of treatment plan set up for you? -Eshani (IBD Team Member)

Hi Keemo, I read your post, and my heart goes out to you. So I signed up to give you some history, thoughts and encouragement. My Crohn's went undiagnosed for 40 years. It hadn't even been documented/"discovered" in 1972. Despite many visits to the ER starting when I was about 10, nothing ever showed up on any kind of test or scan. But the "episodes" of excruciating pain, bloating, cramps showed up throughout my life, often years apart. Episodes were consistent: 8-12 hours of excruciating belly pain, bloating, constipation (just leaky liquid) resulting in violent vomiting and diarrhea at the same time. Eventually I was hospitalized on several occasions for partial bowel obstructions. A week of nothing by mouth, not even a sip of water, draining of the food fermenting in my gut, and I would feel great...until I ate again. Eventually I had surgery as I was loosing ground and suffering from malabsorption. Pathology result was Crohn's. The surgery removed some of my innards, but the damage was too extensive. 40 plus years of strictures and adhesions. I still couldn't eat. FINALLY, I was given a pill camera dry run (best $100 I ever spent). The pill camera practice pill got stuck. Only option left was double-balloon enteroscopy (done from each end to cover all 23 feet of bowel). It is invasive and requires general anaesthesia, but it was the double balloon that finally showed what and where the disease is. It is in a less common location - jejunum and beginning of the small bowl, thus the upper GI symptoms. Damage was not visible by any other procedure. A second surgery made me better, but the damage is too extensive to remove it all. So I lived on a liquid diet for a couple of years. It was a blended concoction of ice cubes, banana, peanut butter, bone broth protein powder, spinach and rice milk, with added vitamins, minerals and electrolytes that I drank 3 times a day. I worked with a nutritionist. It took those 2 years for the insurance company to approve Humira. I've now been on Humira for 7 years. I'm in remission, drinking 2 protein drinks (newer formulation and more variety!) and eat "real food" for dinner and some snacks. Woo Hoo! I'm doing fine, hiking, swimming, etc. Friends and family accept my weird meals and Humira hangovers. I detailed all this to lead to a couple of points: 1) if you ever get to having "episodes" as I described, go to the hospital BEFORE you vomit, so a CT/MRI will show any blockages. (Best advice I ever got) Once you vomit/poop etc. the bowels look perfectly normal. 2) Try to get some protein in your liquid diet, be it from chicken/beef broth or powder (FYI orange juice is too acidic for my belly) 3) Never hesitate to go to the hospital. Different symptoms, different scans, different Drs., different days may uncover a vital clue. Be positive when you can. Have an advocate with you in medical situations. For me it is my husband. When you are too sick or weak to answer questions, they can be your voice. Hoping you are on the road to recovery/remission.

just wanted to check in and see how you're doing?
- Sahara (team member)