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Inflectra

Hello,
Is there anyone who has gotten worse after starting infusions? I’ve had UC since 2015. Initially I was told it was proctitis, then left sided colitis, now after my 4th colonoscopy it has been upgraded to pancolitis. My experience with the hospital has been a nightmare and I’ve had to stop working. Just wondering if anyone else experienced this.

  1. Hi Berry C. Our daughter had a similar experience. She is now on her 3rd biologic medication. Inflectra annd Xeljanz didn’t work for her. She has had to be on prednisone just to keep the bleeding and inflammation under some level of control. She has been hospitalized 4 times since April. Her hospital visits have been really hard on her as well. We were hoping to find other ways to deal with her severe Ulcerative Colitis but she has been so ill that even swallowing supplements has been impossible at times. We are sorry you are having a similar experience. It is clear that the immunosuppressant drugs have made things worse for our daughter. Praying that you find healing and relief.

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