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Mental struggles dealing with UC

I was just diagnosed with UC I’m 20. I felt like my world was gonna end. Im a relatively active and pretty healthy person. But my mom has UC so I inherited it. I was in so much pain throwing up, blood in diarrhea, zero appetite, and horrible abdominal pain. I constantly thought how can I live my life like this and I was struggling mentally. My life is just starting and this happens to me. I wish I never took little things for granted. Now I have to learn to live my life with this condition. Any advice I could use.

  1. I can relate. I got diagnosed at 21. It is definitely hard to come to terms with it and I think it is normal. I too was always healthy and athletic so it is hard to see your body struggling. One thing I would say is to not lose hope. Our bodies are resilient. There are thankfully options for medication and so much info on diets. There are many ways to make this manageable it is just about finding what works for you. It is in the finding that can become exhausting but you have to remain strong and continue to push forward. Start with food journals. Figure out what foods cause symptoms and what foods don't. Also l found that supplementation helped me a lot. Ask your doctor about CBD oil, it's wonderful for lowering inflammation. Ask about L-Glutamine, probiotics, multivitamins etc. But mostly, when you try a medication, if you are not getting results and it has been three months, ask your doctor to change. I think my biggest issue was that I waited way too long for drugs to work and wasted years. Just know there are options for medications and if you aren't getting results ask to try something else. -Elizabeth (team member)

    1. Hello Elizabeth, thank you for the response.(: I just started mesalamine and it’s been 2 weeks and So far my abdominal pain has greatly decreased. TMI but minimal to zero blood is present in my poop. That was my biggest concern since I am anemic as well. With seeing other young people deal with the same condition gives me hope, that I can live my life happy. This is honestly the first time I’ve ever felt like giving up but with constant support and praying, I was able to see myself move forward. I wish you the best and thank you for sharing 💕

    2. You are so welcome. I'm so happy to hear that the Mesalamine has offered you relief. I hope you continue to improve. You aren't alone! And you are stronger than you think. Big hugs, Elizabeth (team member)

  2. Hi Daisy, Think that you're not alone. I would like to share with you that my son who is 19 has been diagnosed with type 1 diabetes and UC. You learned to live your life with this condition. Do not miss your medications and take good care of your diet. Best, Lesly

    1. Hello Lesly, thank you for responding. It’s good to know that I’m not alone dealing with this condition, even if it’s an unfortunate bond. I am so sorry that happened to your son. I wish you both the best. 😊

  3. Hi Daisy, I think you should read this. I am now 21, but got diagnosed at 18 with UC after my senior year of HS before college. Mu condition was about as bad as it could get before surgery. I almost died twice due to blood loss. I was also in the hospital for 3 1/2 months straight in the middle of my sophomore year in college. I am only here now because I know how lonely and confusing it could be in your situation, and I wish someone said these things to me; because these things saved my life, literally. First of all, never lose hope that you can heal completely to full remission. If you’re religious, really use that. You have to really believe, wether if it’s in God, your doctor, your body’s ability to recover itself; whatever it is. Belief is such a strong healer physically. It sounds crazy, but if you want to know why, read ‘Becoming Supernatural’ by Dr. Joe Dispenza. Second, research dieting and it’s effects on your gut bacteria. To make this short, read ‘The Maker’s Diet’ by Jordan Rubin and you will be on the right track. This book saved my life. Also never skip what meds your doctor recommends; but also do everything you can in your power that the doctors can’t do for you! To go back to your point, I had a whole year of my life taken from me when I was just reaching the best time in my life. The doctors didn’t even know how long I would be in the hospital for. Now that I am healthy, I realized that the lessons I learned while on my deathbead at 20 years old have shaped who I am. I am actually grateful for this experience in many ways that I don’t have the time to explain. To sum it up, try to see everything that happens to you as good or part of some greater plan or story in your life, like you’re some sort of superhero. I know it’s a long read but this is how I literally survived death and grew from the absolute worst experience of my life. Feel free to email me if you would like to stay in touch

    1. Hello John, thanks for the reply these responses help. It’s definitely very frustrating since I lost 10 pounds in 2 weeks. Now I’m super cautious about my diet. That’s a huge change for me. But I am religious too, I genuinely believe god has got me through my hospital stays. I am seeing improvements. I am just slightly scared because I am anemic as well. I just have to be more acquainted with my doctors. I also HATE taking medications it’s mentally very challenging. I am very wary of them, especially pain killers. So this is a big hurdle for me. But I hope you’re doing better after everything you’ve experienced. 😀 do you have insta or any socials?

  4. I too was diagnosed at 20, symptoms were sudden at 19. I was very athletic and ate properly but still got Crohn's.
    I lost weight sudden and fast (almost 60 lbs at my worse), I have had numerous surgeries with resections and now an ostomy.

    I am in my mid-50s now and the medications and treatments today are what I have always referred to as a "God send".
    I struggled immensely for many many years until biologic therapy arrived.
    It has taken decades but I am finally back to my original weight and thanks to biologics, I have got my life back.
    You will get through it but it will be hard at times, I cannot deny that and you will find we all go through it. You are not alone.
    Vern - IBD Team Member

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