After having terrible abdominal pain for several days I went to the ER. My blood work had some abnormalities so they did a CT scan with contrast and I was told I had Terminal Ileitis. I was then referred to a surgeon who looked at my scans and told me I have Crohn’s. Two weeks ago I had a colonoscopy, and it was the most painful thing I’ve ever experienced in my life. I am now still waiting on the results of my biopsies, and for the findings to be explained (I was given a paper that said “mild inflammation” was found- but no other info).
I am very confused though. The majority of my symptoms have consisted of nearly constant pain (since I was diagnosed over a month ago), fatigue, lack of appetite, and trouble using the washroom. I know most people with Crohn’s experience substantial bleeding and diarrhea, but that hasn’t really been my experience. I’ve only had diarrhea once, and the rest has been closer to constipation than anything. I also have a lot of back pain. I do have some days that are better than others and sometimes feel worse pain after eating, but that has been it. From the research I’ve done this seems like an odd manifestation of Crohn’s, but I’m not sure. Anyone have any insight on this? Thanks in advance!