bswfeb25
July 17, 2020
Anybody else have Crohn's AND IBS? I'm on Entyvio now for my Crohn's and according to my scope, my Crohn's is being controlled (no inflammation) but I don't feel any better! They think I have IBS too. Nothing helps me feel better. Any suggestions for managing symptoms?
Pam.Kingsland
July 22, 2020
I'm sorry to hear that you're not feeling well,
https://inflammatoryboweldisease.net/living/remission-mean-symptom-free/
https://inflammatoryboweldisease.net/living/test-results/
https://inflammatoryboweldisease.net/living/when-test-results-are-normal/
As far as managing symptoms goes: As a secondary part of a treatment strategy, some patients may also use other types of medications or supplements in order to provide some degree of additional symptom relief. Some of the most common types of medications or supplements for symptom management include:
Anti-diarrheals
Pain relievers
Iron supplements
Vitamin B12 supplements
Calcium and vitamin D supplements
Of course some patients have also found relief with changes in diet, acupuncture, relaxation techniques, etc.
You can dig in deeper here: https://inflammatoryboweldisease.net/treatment/symptom-management/
https://inflammatoryboweldisease.net/treatment/complementary-and-alternative-therapies/
I hope this helps and I hope you find some relief soon! Please know we're all here for you! - Pam (team member)
thedancingcrohnie
July 28, 2020
Hi
Pam pretty much summed it up but just to add, I find that diet change helps me a lot. I avoid wheat, dairy and sugar. I also take supplements like probiotics and Vitamin D. Depending how my blood labs are then I supplement on what is needed.
As far as pain is concerned, I use CBD oil which helps me a lot. And I have a heating pad nearby always. I also use essential oils like Peppermint oil and Copaiba oil to help with abdominal cramping and pain.
What symptoms are you dealing with exactly?
Big hugs,
Elizabeth (Team Member)
Julie Marie Palumbo
July 30, 2020
I am sorry you are experiencing this
The difficult thing about IBS is that it is not easy to pin down what is the cause so trial and error sometimes are your best bet.
This article may also help in identifying some triggers for you, too. https://inflammatoryboweldisease.net/living/cut-cats/
Hope this helps!
--Julie (Team Member)
bswfeb25
July 30, 2020
Thank you all for your answers and suggestions. I will look into all of it! I've tried so many things in the past and nothing has helped, but I'll keep trying. My doctor has also talked about trying me on some IBS medication but I wanted to wait until after this pandemic since I can have some bad reactions to things. My doctor did also say that you can have Crohn's flares while on biologics, but we did some blood work that showed that I have no inflammation. Thanks for all your help. Nice to know I've got you all in my corner and that you all "get it." Thanks!
Barb (aka
thedancingcrohnie
July 30, 2020
We are definitely in your corner and are rooting for you! Also, you might be interesting in our sister site dedicated to IBS. Here is the link if you're interested: https://irritablebowelsyndrome.net/
Hugs, Elizabeth (Team Member)
bswfeb25
July 30, 2020
Thanks, Elizabeth!
© 2010–21 Health Union, LLC. All rights reserved. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks of a procedure for a given patient. Always consult your doctor about your medical conditions. InflammatoryBowelDisease.net does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our terms of use.
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.