Pain medication question with CD

Hi bjrosenbloom,

Thank you for your post and for being a member of our site - we're happy to have you! It sounds like you've had a hard time finding treatments that work for you and work with your different conditions. Unfortunately, we cannot offer medical advice over the internet (for your safety!) but you can find more information about treatment options here: https://inflammatoryboweldisease.net/treatment/.

It does sound like you're on the lookout for a new doctor which is great idea. Your healthcare team should partner with you on this process and offer solutions. If your current team isn't meeting your needs or expectations it's more than okay to seek out others who may be a better fit and we support you in that decision!

Please keep us posted on your situation and let us know how you're doing!

Happy holidays,
Susan (www.inflammatoryboweldisease.net Team Member)

I have short bowel along with massive adhesions and now crohns. The gi has tried a lot of medications with no success so far (bile absorbers, 6 mp and steroids) I got some relief from steroids but can not ween off them. During this time I also convinced the Dr to let me try opium tincture to control pain and crohns symptoms. I wasn't taking much .7 cc twice a day and life became worth living again. The pain and overwhelming fatigue was gone and the best part is the slowing of the gi tract mobility that kept my bathroom trip down to 6 to 8 a day. I could eat what I want without worrying, even consumed vegetables and it did not come out looking like it went in. I gain my energy back and only had a few days every few months where the pain and symptoms were bad enough to keep me on the couch all day. Well here comes the bad part, out of nowhere my last visit he refused to give me another prescription for opium tincture that he had been giving me for the last two years. He said it is not considered standard of care for crohns and just flat out refused telling me to use Lomotil instead. I've done lomotil and if I take a little I get no relief if I add more gi mobility just stops completely not to mention it does nothing to help the pain. so I am back on the couch, heating pads and runs to the bathroom. I am waiting to hear if the local pain dr will accept me as a patient ( I guess the have to review records and then let you know if they will see you) in the meantime I sit and suffer. No otc drugs comes close to touching pain and only seem to aggravate the crohns. The bathroom runs are sucking all my energy out of me and all I feel like doing is crying from frustration. Any ideas on pain meds that may help?

Oh yes, the gi wants me to try biologics ( Humira) but I am reluctant because of the pain caused by processing the 6 mp drugs through my liver that shot my numbers up and never stopped climbing.

Short bowel 2002
Adheashion
Crohns 2015

Thank you for sharing your story sadlady. We're so sorry that you've been dealing with all of this and aren't getting the support or information you need. It sounds like you're trying to get a second opinion which seems like a great place to start. We hope you're able to get in to see the other doctor and build a healthcare team that works with you. Please keep us posted on your journey and let us know how we can help! - Susan (InflammatoryBowelDisease.net Team Member)

My primary care doctor is the one that prescribes my pain medication Norco. He has helped me more than my GI doctor. The GI doctor's don't believe the pain is severe enough which we all know isn't true. I currently don't have a GI doctor because in my area they all belong to one group, I have about given up !!!!