I was diagnosed with Crohn’s disease last week and prescribed 60mg of Prednisone. I was hoping to see some relief but it’s been 6 days and I’m still in severe pain. I just wanted to see if anyone could give me an idea of when I might see some improvement.
Hi @mjo-2021, thank you for sharing and I'm sorry that you're going through that pain! Prednisone can work differently for everyone, but I do recommend reaching out to your doctor to ask what to do if you're not seeing a difference on it. From my experience with the community, 60 mg is a fairly high dose, so you'd hope a week would be enough time to see a difference--but your doctor may say differently based on your individual situation! I will say that for me Prednisone did not make a huge difference, but the steroid Budesonide, used up my rectum in a foam form, did wonders. So it may be too that there are other drugs that would be a better fit for you! Since you've recently been diagnosed, there's probably going to be a large learning curve for both you and your doctor, so I advocate for keeping your doctor in the loop and asking as many questions as you can so that you both start to understand your unique body's situation. I hope this helps some and please feel free to ask any other questions! Also, do you have a treatment plan outside of the Prednisone? Are you going on a more long-term drug at any point? -Eshani (IBD Team Member)
60mg is very high. IV Steroids work wonders on me, and oral steroids do not work at all for me - they give me all the nasty side effects and no pain relief and my pain got worse and worse as I tapered.
I changed Gastroenterologist, he changed my treatment plan, added a few different oral medications, including steroids, but lower doses until my new infusion kicked in and within 3months I am in clinical remission for the first time in 12 months.
I would suggest a new specialist as I was going backwards for 9 months with my other specialist.
Good luck, you are not alone.
Hi Newts, it's very interesting to hear that IV steroids work for you but oral does not. When I took Prednisone, the tablets did very little for me. I wonder if IV would have worked better. It may be something I can bring up with my doctor if we ever talk about using steroids again. I also found that rectal steroids worked well for me (like a foam enema).
I'm so glad to hear that you are doing better now! I definitely agree that it's good to find the doctor that understands your disease and works hard to make sure you're feeling better. Hope that you stay in this remission for a long while! <3 -Eshani (IBD Team Member)
- Sahara (team member)
- Sahara (team member)
Sahara. I have methyl prednisone IV, which works a treat. I am nowhere near the surgery stage. Oral prednisone does not work on me all all.