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Systemic Nickel Allergy Syndrome

My story started in 2010. I was diagnosed with hypothyroidism. Then I developed a nickel allergy. Around this same time frame I was having bouts of uncontrollable diarrhea. In 2019 I was hospitalized with Ischemic Colitis. Then again in 2022. Today I was told by an Allergist/Immunologist that their clinic does not treat Systemic Nickel Allergy Syndrome. That there is no such thing. A gastroenterologist referred me to this specialist because she believes I do have SNAS. Has anyone experienced this?

  1. Hi . It is certainly understandable that it would be distressing to be told that your potential diagnosis doesn't exist. I can't personally speak to Systemic Nickel Allergy Syndrome, but I found quite a bit of research on it and nothing that hinted at the condition not being a real issue. Up to 10% of people have some sort of nickel allergy. Here is a study on the "Higher Prevalence of Nickel and Palladium Hypersensitivity in Patients with Ulcerative Colitis: https://karger.com/iaa/article-abstract/181/6/456/168373/Higher-Prevalence-of-Nickel-and-Palladium?redirectedFrom=fulltext and here is a case study about a woman with UC who was diagnosed with SNAS: https://www.naturalhealthcarecenter.com/docs/IBD-IDA-SNAS-Low-Ni-Diet-Case-Report.pdf. I could cite numerous others. You deserve to be heard and, hopefully your gastroenterologist can find someone else who may be able to help. Please know that this community is here for you and feel free, if you like, to keep us posted on how things are going. Best, Richard (Team Member)

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