Tips for managing diverticular desease
Was recently diagnosed after years of gp appointments, referrals ect. With diverticular disease and diverticulitis. As well as IBS. Food is just a love hate, love to eat it hate to pass it. Laxatives are just demoralising and embarrassing even for oneself. Scared to go anywhere, as anxiety plays a big part in my health. On a morphine painkiller, very low dose but that doesn't really touch it. Tried to self medicate, CBD but that only works for a certain time, and didn't like it as felt high off of it. And don't want anything else messing with my brain. As also had a lot of head trauma in my life. I'm 48 live on my own with my little pet Shih Tzu, Ted. Feel bad most days as I just cannot do the things he wants me to do, torn between donating him to a better home, and a very deep love for him. Just struggling with this, as I have done for many many years as we all have. So of anyone, anyone can recommend, relate, pass judgement whatever whether constructive or not. I'll certainly listen. Amd always willing to try new things. As this is just horrible and takes away you, your freedom, your liberty. Not feeling sorry for myself, not at all, blessed in a way to still be here. But also in a sense not blessed, if ya feel me. Anyway newbie to this, even though signed up a while back I think, can't remember, who's keeping track right 🤯
Prayers for everyone 🙏💛🙏
What treatments are the doctors offering you? Also how is your diet looking and are you taking any supplements to help? When was your last blood work done? Don't lost hope. The body is an incredible machine, you just have to find the specific tools your body needs to thrive and heal. -Elizabeth (team member)
Hi,
And thank you for you're reply. Was discharged last Thursday from hospital with not even any advice, or to see a dietitian. Had to have a catheter to drain nearly 2 litres from my bladder. Not the best experience, and an enema, which when I passed felt like I was pooping rocks!! Since being at home, I live alone and struggle around the house due to other ailments, I didn't eat for 6 days, was told to take laxido, which actually wasn't allowing me to go to the toilet, and antibiotics, which have done nothing, as supposedly I have an infection In my upper intestine, as I literally cannot touch my side, left. Due to pain, even now after finishing the course. I have to lie on my right side just for relief. This is still the case, I struggle to pass, due to being on buprenorphine 0.4mg a very small dose but enough to constipate me. Was for a drug problem stemming 30 years ago. Clean for 17 but just can't break free from the last bit, so been on this for some time. My diet consists of really, the easiest thing to make, I try and eat healthy, as was told more fibre needed but this is just crucified me with pain. Not received any follow up, it was a surgeon saying its either laxido or surgery. When it should of been surgery, and apparently was only picked up on CT scan, as no abnormalities were found in my blood. If I had an infection in my intestine wouldn't this shoe up in my blood. Feel that I have just been palmed off by the NHS maybe due to my past history, but as said clean for 17 years. I just cannot find a food that suits my body. I spend 9 hours a week on the toilet, which is ludicrous, I don't drink, apart from juice, mango seemed to help, but it's all very short lived. Scared to eat if honest. Can see myself undergoing the knife for this. But the NHS is at its knees, ready to pay for It myself, as I do have some savings. That were if honest for my funeral. As feel like I'm dying, I'm always cold. Can never seem to warm up. Tried senna today, to see if that can help me go, as the laxido was causing me to bloat up again, and fill with fluid. And don't want another catheter as just unbelievable pain when they do this procedure. Actually very lost, and don't know what to do to be honest, I did complain to pals, and have received an email to say things are being looked into but received nothing back as yet. So still a waiting game, but a game I don't want to be playing. Really very worried..
M..
