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UC and Celiacs

Hello!

Wondering if anyone out there was diagnosed with UC and then Celiacs (or the other way around)? Colonoscopy and endoscopy earlier this week showed signs of Celiacs. Need to do some follow up blood tests to confirm or not, but curious if anyone else has both conditions. My biggest concern is that a lot of what I eat currently, especially during a flare, would be high in gluten (white bread, pasta, etc.) Perhaps that is actually making things worse in the long run. More to come I guess…

Thanks!

Kirsten

  1. I was not diagnosed with either, I was diagnosed with Crohn's Disease. However, I find that when I cut out gluten and more specifically wheat in total. I feel my best. Perhaps start cutting it out regardless of results and if you feel better use continue with the diet change? It could definitely be that those foods could be contributing to increase in symptoms. -Elizabeth (team member)

    1. Hi Kirsten (). I know Celiac disease can often mimic IBD (see: https://inflammatoryboweldisease.net/living/what-to-do-think-have-ibd), so it will be interesting to see how the tests come out. I also know that a number of recipes that we have in our archive are gluten-free (a quick search on gluten using the button at top left will yield some options). Our patient leader Jenna wrote about her experience going gluten-free with Crohn's: https://inflammatoryboweldisease.net/living/gluten-free-diet-crohns and Tracie about her experience with UC and gluten-free here: https://inflammatoryboweldisease.net/living/gluten-ulcerative-colitis. Hope this information is helpful and please feel free to keep us posted on how things are going. Best, Richard (Team Member)

      1. Hi Kirsten () , in addition to the information Elizabeth and Richard shared, I just wanted to chime in and let you know that we hope you get some helpful feedback from community members here, and that your test results give you answers. I would imagine that the idea of going gluten-free when that's the majority of your diet during a flare might feel daunting. The good news is, there are a lot of gluten-free options (including bread, crackers, pasta) that are made with ingredients that are hopefully also easy on your GI when you're flaring. (My oldest child has Celiac - but not an inflammatory bowel disease - and eats mostly carbs, so I feel fairly familiar with those.) If you're comfortable, please let us know what you find out from the doctor and your lab results. We'll be crossing our fingers that you get answers, and some relief! Sending you gentle hugs. -- Warmly, Christine (Team Member)

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