What are some infusion medication for Crohns disease?
I am currently using Pentasa for my Crohns disease, but with an MRI my gastro guy says there is active inflammation. I had been using it for at least 10+ years, He says it's not controlling my inflammation anymore . What do I do now?
Hi
, that's too bad to hear that your current treatment isn't controlling your inflammation anymore. Unfortunately, it's not too uncommon for a treatment to begin to lose it's effectiveness after time. Luckily, there are a lot of different treatment options for Crohn's. I'm linking an article with information about types of treatment, https://inflammatoryboweldisease.net/treatment/treatment-type-ibd, as well as this one for types of medications, https://inflammatoryboweldisease.net/treatment/medications. I hope the articles can give you a starting point, but ultimately, this is a good discussion to have with your doctor. He may already have an idea for what treatment he would recommend trying next.
In the meantime, hopefully some of our community members here can chime in on treatments that they've found helpful in managing their inflammation from Crohn's, but please don't hesitate to reach out here, anytime! Wishing you a gentle day. -- Warmly, Christine (Team Member)Thank you Christine!
you're very welcome! And I hope you can get some helpful information here, as well as from your doctor. Will you please keep us posted with what you find out and decide to do next? Sending you gentle hugs. -- Warmly, Christine (Team Member)
I was also on Pentasa for awhile until it quit working. Then tried Remicade that didn't help so went to Humara. That helped for years. I didn't mention I have Crohns/Colitis. A year ago I had a blocked small intestine and talked about pain! Now the only thing they will give me for pain is Tylenol. I lay in bed 20 hrs a day and fighting for SSDI. I really don't think a lot of people don't realize how bad this disease really is. Anyway I hope you find relief. , I saw your message to Sheryl and just wanted to let you know that my heart really goes out to you. I can hear how much pain you're in, and how challenging it is that they will only allow you Tylenol for it. I am so frustrated for you that it is so hard for you to get the relief you deserve, all while fighting for SSDI. I do know that many people here are able to get SSDI, sometimes it just takes more than one attempt. (Talk about a hassle!) Are you working with a SSDI attorney? It sounds like you're pretty well on your way, but I'm sharing a link to some information on disability benefits, just in case, https://inflammatoryboweldisease.net/resources-disability. I also wanted to share this article from one of our health leaders about some of the things he's found helpful for IBD pain, https://inflammatoryboweldisease.net/living/colitis-crohns-pain-relief. I'm not sure if they're feasible for you, or if you've already tried them, but I wanted to share, just in case. Please don't hesitate to reach out here, if you have questions, need to vent, or could use some support. Sending you gentle hugs! -- Warmly, Christine (Team Member)
