Which new medication to choose . Help!
Hi. I've been on azathioprine and asacol for around 17 years. I've been given the option to change to either Filgotinib tablet or infliximab infusions. Dr has sent me print out sheets but other than how their taken I can't see much difference and no idea if it's better treatment than I'm on or whichbto choose..
I'd be grateful if anyone with experience of changing to these drugs could share their experience. Many thanks.
Hi
. I can't personally speak to these treatments, but I do want to ask if you had a chance to check with your insurance on the coverage for each of these treatments? I hate to break things down to economics when it comes to care, but, unfortunately, sometimes it is necessary and if both options seem viable cost could be the deciding factor. Hoping others chime in with their experiences with these treatments and please feel free, if you like, to keep us posted on how things are going. Best, Richard (Team Member) Thanks so much Richard. I'm in Britain so fortunately affordability isn't something we have to consider. I can only imagine how awful it must be at times for others who do.
Appreciate you reaching out though as it's definitely a factor for a lot of people I'm sure.Not having health insurance in America, only about 10 states provide it. I am self pay. Seeing my Gastroenterologist is very expensive as are the tests & medications.
It's very difficult to manage w/o being able to see my doctor on a regular basis. It's just out of reach for me financially. I was diagnosed w/ having UC 4 years ago. Recently I had to go to the ER for bleeding, vomiting, dizziness and major fatigue. I was having a hard time thinking and forming sentences. I was told to follow up with my doctor. I am taking antibiotics, Prednisone and anti spasm/ muscle relaxers. Eating is tricky as I immediately have to run to the bathroom afterwards. Stress doesn't help but how can we not stress when our gut and bodies are all running amuck & there is so much pain. No one in my family understands that there are days when resting in bed is all I can do. This is where therapy for this disease would REALLY help me. I am 58 now & dealing with it in my own.
It's hard to keep positive & continue on some days. I hope this group will become a good support system for me. I have already learned so much from reading everyone's stories. Peace & healthy healing to everyone. 🙏Hi
. Yes, this community is here to support you. The cost of care for IBD is certainly a problem for many. I won't claim to have the answer, but we do have this article from our editorial team on managing healthcare expenses: https://inflammatoryboweldisease.net/resources-cost and this Forum discussion on how to get help with the cost of medications: https://inflammatoryboweldisease.net/forums/can-get-help-cost-medication. People here understand how hard it can be to stay positive, but the group is stronger together. Best, Richard (Team Member)
Hi
! I don't have experience with the tablets, but I have been on Infliximab infusions for a few years now. They have honestly really changed my life and brought me out of a terrible flare.
The infusions themselves can be time-consuming (I get them every 6 weeks and they take about 3 hours) and I am usually tired and cranky for about 24 hours. Sometimes I get some muscle soreness. But I haven't had other side effects, and my illness has been under way better control.
I am happy to answer more questions about Infliximab if you have them! -Eshani (IBD Team Member)
