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Wife just diagnosed with UC

Hello,

First of all, it is a blessing to have a place to go. My wife has been suffering with symptoms for a few months (diarrhea, cramping, blood in the toilet after going to the bathroom.

She had a GI done this week and they said she has mild to severe UC. They put her on a steroid to take for four weeks.

I want to do anything I can to help support her. Looking back at when you were first diagnosed, what do you wish your spouse of loved ones knew and could have helped with?

Thank you

  1. Bravo for reaching out and asking such a profound question! I only wish my family had done the same when I was first diagnosed. For each person, I'm sure it's different. But for me, knowing my spouse is understanding and always accommodating makes me more comfortable--and comfort is KEY with any IBD. My husband always offers me the bathroom first and never judges me for the time I spend in there. He knows how I struggle because he has seen my colonoscopy images. Whenever we travel, he's always cognizant of making numerous restroom breaks for me. He knows how anxious I get about nearly everything, and anxiety is the enemy to UC. In short, he's always kind and gentle in regard to my UC flares. He never chastises me nor does he make jokes at my expense. This information might seem trivial, but it's vital to someone who struggles with gastrointestinal issues. Above all, he's supportive in a way that always provides me with the most peaceful environment (whether at home or elsewhere) to help relax my nerves. Does that make sense? Knowing "triggers" for your wife is helpful and offering her an atmosphere of "ease" will help calm her nervous and gastrointestinal systems. Have an open and honest conversation about what you can do for her to ease any sort of pain. As I stated at the beginning, each person is different. Maybe your wife has different needs that you can address. For me, I know that supporting her, understanding her pains, offering patience, and being accommodating are all helpful ways! Hopefully, some other folks chime in with their own ideas because it's always helpful to hear others' opinions. Please let us know how it goes. Joining this community is a GREAT way to demonstrate your support for your wife. Plus, it will offer you a plethora of information as well. I hope your wife is doing well. Hugs! --Traci, UC-IBD Team Member.

    1. I was just diagnosed 2 months ago with UC and I completely agree with Traci on ways you can be there for your wife. Just make her feel as comfortable as possible to share anything that is going on. My partner has made me feel like I can tell him anything, about my bathroom time, my pain, my needs, my anxieties, concerns. I’ve cried over the silliest things and he’s never judged me or laughed at me. And he’s never brought up anything, embarrassing, after the fact to make me second guess how I was feeling at the time. He’s been the most supportive in so many ways and I would love to connect and share more if there’s anything more you want to know, please reach out. - Jordan

      1. I am so happy to hear that you have such a supporting husband, @jordyyJ! Some love and support go a long way, especially when living with UC, and having someone you can share your experience with who understands is something to be truly grateful for. I hope that you find the right treatment plan that works for you and have the relief you deserve.

        --Julie (Team Member)

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