Australia is behind the times - IBDI'm frustrated. In Australia, there is very little support or organisation for people with IBD. There is not even any statistics or data on people living with IBD in Australia...reactions1comment
About To Live My Best Life, But First... Infusions! [PART ONE]Lately, I’ve really been feeling the need for change. Not just lately. It actually started a while ago. I’ve spent much of my life sick or taking care of the...reactionscomments
Things That Annoy Me As A PatientAfter being a patient for more than 15 years, there’s a lot I’ve observed - good and bad. More recently, I’ve been in and out of a lot of specialists...reactions3comments
Do you wait for the other shoe to drop too?Life is not always smooth sailing. Some days I wondered what I did in a past life to deserve this one or even wondered if I have paid my dues...reactionscomments
You know you've had IBD far too long when...When it comes to IBD, we're all in the same boat, but you can usually spot the difference between the newly diagnosed and the old-timers who feel as if they've...reactions3comments
Preparing to Become a Mother with Crohn's Disease - Part 2In my last post, "Preparing to Become a Mother with Crohn's Disease - Part 1", I shared several of the things that have stood out for me in planning for...reactionscomments
World IBD Day: In 2019, is awareness of IBD actually any better?Awareness is a word we hear a lot about when it comes to living with IBD. And with each World IBD Day comes another chance to raise awareness of Inflammatory...reactions2comments
Why IBD Awareness MattersIBD...a fad it seems? When I was diagnosed about 12 years ago, I rarely saw commercials for medications to help with IBD. Now, I would be surprised if I didn’t...reactions1comment
Chest Pain With IBDWe asked the community to submit questions about inflammatory bowel disease IBD, and we received a range of great ones! Here, Dr. Nandi answers a question related to chest pain...reactionscomments
Nutrition, Food, and IBD: Community Questions AnsweredWhen we asked the community to submit questions about inflammatory bowel disease (IBD), we received a range of great questions related to nutrition and IBD. Dr. Nandi answers several here...reactions2comments
How to Be the Best Companion While Living with IBDThis has crossed my mind a million times. If it were the other way around, and my husband was the one with Crohn’s disease, how would I handle it? And...reactions3comments
What it's like to be a mom with Crohn'sWhat’s it like being a mama with Crohn's? It’s feeling like a walking zombie day in and day out as you deal with interrupted sleep and chronic illness fatigue. It’s...reactions2comments
Preparing to Become a Mother with Crohn's Disease - Part 1In my last post, We Have to Plan to Plan - Life & Routine with IBD, I talked about how my Type A personality has evolved since my journey with...reactions14comments
Back Pain and Inflammatory Bowel DiseaseBefore I get into the topic at hand, I just wanted to take this time to let you know how much we really value your comments, thoughts, stories, suggestions, and...reactions8comments
Getting Through The UnplannedI wrote a few articles last year about how my mental health was affected by several long hospitalizations and how it lead to the crumbling of my mental health. And...reactionscomments
When you reach that moment that you feel like its just not your pathI was lucky. I have always been an intuitive person. I've always just “known” things and have even been lucky enough to have a mother that encouraged following that instinct...reactions1comment
When IBD Wants To Share Mother's DayEight years ago, I officially became a mother. Ten years ago, I officially became an inflammatory bowel disease (IBD) patient. And the two lives often bicker and fight over who...reactions2comments
The Doctor I FiredA few years ago, I didn’t like where my care was at. I had been in and out of the hospital and trying several biologics that were not working and...reactions1comment
Music TherapyTurn your darkness into light Turn your silence into sound Josh Groban My whole life, I’ve turned to music to express the things I couldn’t. Whether it was enthusiasm or...reactionscomments
Passover 2019I have to be honest- I usually don’t keep Passover. Keeping the holiday means not eating anything with yeast in it. This mostly means staying away from bread for eight...reactions1comment