When Loss is so RealThe IBD Community has suffered so much loss lately. So many young warriors have lost their battles against this disease. Horrifying isn’t it?! When I talk about or explain what...Reactions0reactionsComments3 comments
Securing ADA Accommodations at Large EventsBefore I began experiencing symptoms of Crohn’s disease, I really enjoyed going to large gatherings such as concerts, performances, conventions, and sporting events. As someone who has wide musical interests...Reactions0reactionsComments2 comments
TransitionsWhen I was 16 years old, I decided I wanted to be a filmmaker more than I wanted to be an actress. But having grown up in the entertainment industry...Reactions0reactionsComments1 comments
Sharing Medication Experiences With OthersOne of the benefits of sharing our personal experiences with others is that it allows someone who is going through a difficult time to know that they aren’t alone. In...Reactions0reactionsComments2 comments
504 ContinuedI recently wrote about how I was having trouble getting an accommodation plan for me at work. For those who are not familiar with a 504 plan, this is an...Reactions0reactionsComments0 comments
Patient vs. Caregiver 2Read Part 1 here. Being a patient is almost easy compared to what I've witnessed as a caregiver. It's hard. But honestly, I'd rather suffer than watch someone I love...Reactions0reactionsComments2 comments
"Still Tired": Living With Crohn's FatigueI feel like "still tired" is sometimes the anthem of my life. When my Crohn's disease is active, my fatigue can be debilitating. Sometimes I'm forced to stop answering phone...Reactions0reactionsComments29 comments
Disability Advisors & Access to AssistanceIt’s fall. That means back to school. And for many of our readers, that means off to college or university! But they can also be full of anxiety, nerves and...Reactions0reactionsComments1 comments
IBD Stole My Job, House, Benefits, and Financial SecurityWhat I’m about to tell you is a crisis of conscience that many of us with chronic illnesses mid-career will experience at least one time during our careers, if not...Reactions0reactionsComments0 comments
Having an F- It MentalityLike many people, I have always been someone who cared what other people thought. I do think being diagnosed with inflammatory bowel disease (IBD) at the age of 13 has...Reactions0reactionsComments2 comments
How to Fight the Flu with IBDWhile getting “normal people sick” may be inevitable for many of us, here are a few pointers on the Flu. Why it’s so important to get the Flu vaccine every...Reactions0reactionsComments1 comments
The PressureWhen living a life full of flares, pain, and worries it can be easy to fall into that category of deep depression. To just feel like giving up. I know...Reactions0reactionsComments1 comments
Let's Talk About Living With a SetonNot long ago, I shared my top tips for living with a fistula. This is still an area of IBD that is rarely written about. I wanted to shine the...Reactions0reactionsComments4 comments
IBD Patients and Caregivers Become Desensitized To So MuchSometimes, I forget how desensitized I have become to certain things until something smacks me in the face. I recently found out that a friend of mine passed away. We...Reactions0reactionsComments2 comments
World Ostomy Day To Me Part 2Read the first part of this article: World Ostomy Day to Me Part 1 What does World Ostomy Day mean to me? Post surgery, our first stomal meeting was very...Reactions0reactionsComments0 comments
World Ostomy Day To Me Part 1What does World Ostomy Day mean to me? I grew up in a family where we didn’t talk or acknowledge that my aunty had an ostomy. It was all hush...Reactions0reactionsComments0 comments
Nine Years LaterAt 23 years old, my health changed. At 23 years old, my life changed. Nine years ago this week, I began experiencing symptoms of Crohn’s disease. As I have written...Reactions0reactionsComments2 comments
House Guests and TastingsLast weekend we had our first house guests at my new townhouse. My fiancé and I welcomed her sister and brother-law in from Texas, as they are helping us with...Reactions0reactionsComments1 comments
The Warning Signs of Crohn's DiseaseWhen I was first diagnosed with Crohn's disease, I never really thought of anything beyond my digestive symptoms. And, naively, that they would soon be resolved now I had a...Reactions0reactionsComments4 comments
Patient vs. Caregiver Part 1All of my life I've been a patient and a caregiver. I've taken care of myself and my family. I've managed to maneuver through my condition as well as the...Reactions0reactionsComments1 comments