Will I Be Enough? Thoughts from an IBD MomThe past few nights I've laid awake in bed. Holding on tightly to my pregnancy pillow. Feeling my baby girl kick and punch her way around my abdomen, as another...Reactions0reactionsComments2 comments
Does All The Trial And Error We Go Through Impact The Ways We Communicate With Our Loved Ones About Their Own Health?Most people who have suffered from a form of inflammatory bowel disease (IBD) for a significant amount of time have seen countless doctors of a wide range of specialties. A...Reactions0reactionsComments1 comments
Physical Therapy after the VentTwenty days on life support was the result of Crohn’s. MERSA and staff infection had taken over my body in the spring of 2007, and my body could not keep...Reactions0reactionsComments0 comments
My Feelings on Using ADA Accommodations at Large EventsIn my last post, I talked about Securing ADA Accommodations at Large Events, and listed some of the benefits to asking for assistance when navigating events with Crohn’s disease and...Reactions0reactionsComments0 comments
Chronically VigilantRecently, I was asked how living with an invisible illness affects my daily life. I have to be completely honest, upfront before I say anything else. My response to this...Reactions0reactionsComments2 comments
Bitter Party of 1: Remission News Felt Like a Big Fat LieEarlier this year, in order to avoid a colonoscopy, I participated in a non-invasive test that would provide real-time pictures of my insides. The results provided good news. Yet, it...Reactions0reactionsComments8 comments
Tips For Explaining IBDInflammatory bowel disease (IBD) can be difficult to understand, let alone explain to other people. Not to mention, there tends to be a lot of confusion among the general public...Reactions0reactionsComments1 comments
Therapy - Does it Work? Part 1For years, I struggled to figure out what went wrong with my surgeries. Why did I spend over a year fighting for my life, while many were successful right off...Reactions0reactionsComments1 comments
Approval of Biosimilar Hyrimoz™ (adalimumab-adaz)The U.S. Food and Drug Administration (FDA) has approved Hyrimoz for the treatment of psoriatic arthritis (PsA), rheumatoid arthritis (RA), ankylosing spondylitis (AS), Crohn’s disease in adults, ulcerative colitis, plaque...Reactions0reactionsComments0 comments
A Letter To My Long Gone ColonYou're gone. It hurts. Well mentally. It hurts mentally because you were actually the cause of my physical pain. There are days I wish I was normal. I wish you were normal...Reactions0reactionsComments1 comments
Getting appy: The apps I use to manage life with Crohn'sAm I the only one who's a bit of a phone addict? Perhaps it's the fact that so much of our support for the illness can be accessed on our...Reactions0reactionsComments1 comments
Stares at a PICC LineI got my PICC line about 2 months ago after several hospital stays during the month of April. Due to the only very small veins in my hands and feet...Reactions0reactionsComments2 comments
How to Pack for an Important Trip with Crohn'sIn my last post, I talked all about how to plan a destination wedding with IBD. I realized that offering suggestions on packing for an 8-day trip was a longer conversation...Reactions0reactionsComments3 comments
It's Not About Me AnymoreI admit I have been an extremely selfish person over my lifetime. I’m very giving, but I can also be extremely selfish at times. I realize I have a chronic...Reactions0reactionsComments1 comments
Getting a Disabled Parking Permit and Getting Over StigmaI wasn't able to find a parking space within reasonable proximity to the front of the store. By the time we hiked from the parking space to the store, I...Reactions0reactionsComments3 comments
MRI in IBDOften when your Gastroenterologist orders imaging, CT scans may be the first recommended course for assessment of IBD, but according to the National Institute of Health, this is because of...Reactions0reactionsComments3 comments
What I Eat and Drink in A Day with Crohn's DiseaseBefore I begin today's post, it's important to say that this post is a personal diary of my food choices and not in any way designed to be a model...Reactions0reactionsComments13 comments
Moving In With Someone When You Have IBDWhen you live with a chronic illness like inflammatory bowel disease, so many things come up over the course of your life that you probably never would have imagined would...Reactions0reactionsComments2 comments
3 Things You Need To Stop Doing ImmediatelyAs people living with chronic conditions, we tend to live with a lot more stressors than everyone else. We have the stress of managing homes, raising kids, doing chores on...Reactions0reactionsComments2 comments
The HolidaysEvery Fall, the “High Holidays” in Judaism is upon us. Since I practice this religion, it is a time spent in synagogue, eating with family and following the traditions of...Reactions0reactionsComments2 comments