Do you feel bad even in “clinical remission”?

Hi there! We are so sorry you are feeling so badly. Unfortunately, it isn't uncommon to still not be feeling well despite being told you are in clinical remission. However, given the fact that your joints hurt, have you considered seeing a rhuematologist? Inflammatory bowel disease is often associated with arthritis in some patients so it may be worth having blood work done just to make sure nothing is being missed. Hope you find the answers and relief you deserve soon! ~Marisa

Hi there I was and may still be in remission with symptoms. It’s unfortunate remission isn’t what we were hoping for. But I hope some day it will be. Best of luck

Hi Rebecca, here is an article that talks about remission. I know far too many peopel who struggle the same way you are, hearing they are in complete clinical remission, yet they are still showing symptoms of active disease.

I know different diagnostic tests can help find certain areas (like pill cams vs. MRI vs. MRE etc.).

I know some months have passed - have you sought an opinion from another GI or specialist?
Best
Kelly

Yes. Definitely possible. I've been in remission and felt bad. There are also other aspects of Crohn's, such as intestinal adhesions post-surgery that can cause issues. There could also be intestinal damage--strictures or other formations like fistualas--from prior inflammation--that continue to cause issues even when in remission. Finally, you could be having side effects from medication.

Hope you feel better and not trying to scare you. Just letting you know that it is normal to have symptoms when in remission. If they get very bad, you should probably go back to your doctor, of course, and get further testing.

Best,
Matt (Team Member)