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How strict do you follow certain diets?

Diagnosed with ulcerative colitis this past year. Allergic to mesalamine and budesonide did not work. Prednisone taper and remicade initially helped. Recent flare slowly resolving with Prednisone and Remicade and Vancomycin. Got my calprotectin level down to normal in mid June after a high of 2000 in March. One dose of doxycycline for a tick bite on 6/14 started a flare and probably CDiff again.

Anyone notice a burning sensation inside your mouth? Anyone using mega spice probiotic and mucosal healing drink powder? I am 66 and still trying to wrap my head around all of this. I read that some of you eat potatoes- how about rice? I’m currently following SCD and on Vancomycin (3rd dose in a yr. due to appearance of C Diff on 3 sigmoidoscopies). I hope to get off infusions and progress to oral meds as we will lose our insurance when my husband retires in the next 6 months. Any advice or experiences you share are appreciated.

I am humbled by the courage, persistence and struggles everyone here describes. Has anyone heard of or tried the ‘Briggs Protocol’’, daily sunshine and microbiologist Michelle Moore’s protocol for CDiff?

Thank you for your patience with my questions and your responses!


Community Answers
  • Matt Nagin moderator
    4 days ago

    I don’t follow any specific diets, just try to learn my trigger foods and avoid them as much as possible.

  • Pam.Kingsland moderator
    4 months ago

    Hi @maryzc, thanks for your question! Diets are certainly difficult to navigate when it comes to IBD, because everyone’s experience can be so different! Some of our advocates discuss different diets and what has helped them. I’m linking them here:
    https://inflammatoryboweldisease.net/nutrition/crohns-and-the-fodmap-elimination-diet/
    https://inflammatoryboweldisease.net/living/lifestyle-change-saved-life/
    https://inflammatoryboweldisease.net/living/nutrition-food/
    https://inflammatoryboweldisease.net/living/helpful-hated-foods/

    I’m hopeful that others will weigh in with their experiences as well! I hope this helps for now. Please reach out anytime! – Pam (team member)

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