caret icon Back to all discussions

Awaiting colonoscopy

Hello,

I’m 29 and since November I have had loose stools every morning a number of times a day. Thinking it was just my IBS I called the GP in December to go back on medication (I hadn’t flared this bad since the birth of my child).
Had medication and not helping so I called again mid-end January and GP requested blood and stools. Stools came back with blood and 196 calprotectin levels so an urgent referral to gastro was done beginning of feb. Stools taken again for other bacteria present and came back negative.
Since then I’m still suffering, especially in the mornings and sometimes early hours, I struggle to leave the house for more than a couple of hours in fear of needing to go.
Anyway 2 weeks have now passed since referral and heard nothing, I have been chasing but no luck… I just wondered how long everyone waited for their colonoscopy. I just want it done so I can hopefully have some answers and start medication to help the flare. Thanks ☺️

  1. Hi there, I am so sorry you are going through this and it is taking some time for you to get your colonoscopy scheduled. How frustrating! I would suggest reaching back out to whoever is scheduling your colonoscopy and pushing to get it scheduled. It is possible that you may have to wait some time to get it done (at my busy GI's office they scheduled me for an October colonoscopy in August), but you should at least be on the schedule so that you know the timeframe. I know it can be hard to be persistent in these situations, especially because we don't want to come off as annoying, but I like to think about it as advocating! Doctors can be good, but ultimately we are the ones living with our diseases and we are the ones who have to make sure we are getting the care we deserve! Thinking of you. Please keep us updated! -Eshani (IBD Team Member)

    1. Sorry you are going through this. When I was first diagnosed, I got a colonoscopy within two weeks. However, it depends on the doctor. With my current doctor, I have to schedule them with 6 months in advance. -Elizabeth (team member)

      1. sorry, I can't really give you a timeline, as the system is a little backed up due to COVID-19. I just wanted to send you a gentle hug, and I hope you get in for the colonoscopy soon so you can hopefully get some answers/treatment.
        - Sahara (team member)

        1. checking in to see how you are doing and if you were able to get your colonoscopy? If not what have you been doing to cope with your symptoms? I hope you have been able to find moments of relief during this hard time. Lynne S(IBD team member)

          Please read our rules before posting.