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Awaiting diagnosis and struggling

Hi. I have been suffering with chronic pain that can leave me sofa/bed bound for days at time, everyday for over a year. The consultant now believes I have crohns disease and I am waiting for an mri. I'm a young adult, who prior to this, was an active walker and I loved to socialize. Now when I'm asked to do something I feel embarrassed to say I physically can't. I am exhausted after a few hours of doing nothing and it makes me really sad that I can not do the things I used to. I hate myself for it even though it is out of my control. No one around me understands what I'm going through and it makes me feel alone. I just want the pain to stop. Waiting 3 months at a time for an appointment is difficult.

  1. My heart goes out to you, . I'm so sorry to hear what you are enduring. I truly hope that your pending test results, and upcoming appointments, prove to be helpful at getting you a proper diagnosis. Which will lead to a healing path forward. Try to practice some self-compassion and kindness. There is no need to hate yourself for something that is out of your control. I know that practicing self-kindness can be easier said than done, especially when you feel as if your body is against you. Sending so many gentle hugs and kind thoughts your way. Wishing you relief. -Jessica, IBD Team Member

    1. I totally hear you, and I am sorry you are going through this. I was diagnosed when I was a senior in college, and it was awful to skip out on social activities. Others in my age group struggled to understand and I felt really alone. I want to tell you that we are here for you, and that it is not your fault that you are out of control of your body. You are going through something so REAL. I hope that you are able to get some relief soon through talking to a doctor. In the meantime, I hope you are able to stay hydrated and get rest. <3 -Eshani (IBD Team Member)

      1. my ulcerative colitis has been in remission since 14' and 22' scope showed ZERO UC and ZERO polyps for 53 yr old male

        what is your diet? tell me every single thing you eat be specific, detailed

        also what is your stool like right now...mucous, blood, etc..? there is a medicine that is very much prescribed but never in the right form, I can tell you what to ask your dr for to start the healing process

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