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Tips to better explain Crohn's or UC to family and friends?

Whether it's a romantic relationship, a friendship, or someone from work - maintaining relationships while dealing with Crohn's and UC can be hard. Any tips to better explain Crohn's or UC to family and friends?

  1. Hi , I think for me the best way to explain it is to share what a doctor has said. This is because--sadly--I find that many people do not believe me (especially my family). When I share with them what the doctor has told me, they feel they are getting an expert opinion and they don't debate me or fight! -Eshani (IBD Team Member)

    1. Over 50 years living with the beast. My "truth" is diet that works for me and controlling stress. The stress factor is an absolute trigger. I don't need to live in a bubble. Daily stress is normal and the key to control is how you handle it. When you cannot find a constructive response to stress you have to learn to let it go.

      1. Wise words. Thank you for sharing! -Elizabeth (team member)

    2. Chrons = ulcers from top to bottom!

      1. , absolutely, we hear you! Crohn's ulcers can be so tough. I'm linking an article here with some information about mouth ulcers from inflammatory bowel disease, And this one has information about mucosal damage, It sounds like you might be familiar with one (or both) or these? Do you have any tips or tricks that you use that are helpful? -- Warmly, Christine (Team Member)

    3. Informative videos. Not everyone will read articles, etc.

      1. sharing videos is such a great idea. There are plenty of people who might be more willing to watch a video rather than read an article. What a great tip! -- Warmly, Christine (Team Member)

      2. Hi . Excellent point, plus some people simply learn better visually. While we are definitely predominately articles here, we do have some videos, such as this one from a doctor on diagnosing Crohn's and UC: and this one from Kelly J. on the life of someone living with an invisible disease: Best, Richard (Team Member)

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