Would really appreciate a reply
My 14 year old daughter is going through severe abdomen pain (constant) for past 4 months. Initially she was constipated and past 45 days severe diarrhea (Almost 25 times a day). She has other symptoms like blood in stool (which they blame on hemerhoids), sever nausea, vomitting, jint pains, fatigue, irregular periods, muscle wakness, anaemic, low Vitamin-d, Feccal calprotecting of 100.1. Mouth ulcers, loss of apptetite
All these point to Crohn's, but GI is unable to diagnose. They found Chronic Focal Itelitis in Colonoscopy, but think it's NSAID damage (Ibuprefen) that caused it and not IBD.
Her promtheus IBD panel came back double positive (ASCA Igg and ASCA Iga). But Children's hospital does not think it is a good test. She had Upper endoscopy, colonoscopy, MRE to look at small bowel and also capsule, except her symptoms and Chronic Ileitis, they have not found much.
We are planning to take her to Mayo, but she is not functionally doing well to take a 2 hour flight and is on NG Tube and wheelchair
Has anyone gone through similar symptoms and eventually diagnosed with IBD or other conditions ? Any suggestions are welcome.
Also, if she takes oral feeds , it starts paining 15 to 20 minutes later heavily. She has a constant pain of 6 or 7, and some mini flares once in a while that gets it up to 8 or 9 pain
Thanks and appreciate any insight. Current GI doctors have diagnosed her with Visceral Hypersensitivity, which we are not agreeing