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Colitis

Hey anyone here with colitis? Please what are your symptoms and what do you do when you get inflammation?

  1. Hi, , while we wait on others to weigh in, I thought I would share some information on the different types of colitis - https://inflammatoryboweldisease.net/what-is-crohns-disease/causes. Also, included some information on inflammation - https://inflammatoryboweldisease.net/symptoms/complications/inflammation. I hope this is helpful. Please, keep in mind what works for some, may not necessarily have the same effect on others. We always recommend reaching out to one's doctor about new or developing symptoms. Wishing you well. -Jessica, InflammatoryBowelDisease.net Team Member

    1. UC here! I don't have a colon anymore, so the UC itself is no longer an issue.
      My symptoms were all of the "standards" ones; abdominal cramps, increased frequency and urgency, blood and mucous in stool, chronic fatigue, tenesmus, diarrhoea, etc.
      I simply had to slow down, eat a low fibre diet for the bowel movement side of things, and I would contact my IBD team who would adjust/change treatments, so then I'd wait for those to work. Not much else I could do really lol. Pain relief and hot water bottles were always useful.
      ~ Sahara (Team member)

      1. I’ve been in remission from UC since I was put on Humira 9 months ago. I’ve only experienced one bad flare up in my life so I’ve been fortunate. My advice is find a good doctor. I was misdiagnosed 11 years ago. When I quit smoking 3 years ago that’s when I completely flared up. Life was miserable. Now that I’m remission I pretty much lead a normal life. I still have some loose and frequent movements from time to time, but it’s manageable. Don’t be afraid to contact your doctor if your symptoms continue or get worse. UC can get out of control very quickly. I hope you find some relief!

        1. Good advice @chrisr. Finding a good doctor is key to being able to fight the disease. It isn't always easy finding a good doctor but the search is well worth it! Glad to hear you are in remission. Hugs, Elizabeth (team member)

      2. Hi Everyone I was diagnosed with with pancolitis in 2017 with involvement of my ileum. Since my diagnoses I have had lots of different medications and doctors unfortunately my doctors keep retiring. I find that one medication will work for me for a while and then they have to add more medication on top of it. I get all of the symptoms abdominal pain, loss of appetite, weight loss, diarrhea, blood for stool, fatigue is a big one, joint pain. When I go into a flare ( I’m currently having the beginning of a flare now) I go on to a soft food diet and I try to rest my body as much as possible. The more I can relax and stick to my diet the more likely I can put myself back into remission without having to go back to the doctor. Hope this helps. As time goes on you will find the foods that work best for your IBD know to peoples IBD is the same and no to peoples diet plan will be the same either. Hang in there

        1. oh my goodness.. I can't express how bad it feels to go through these conditions and I am extremely familiar with all these symptoms, to the extent where I was wishing I was dead... But, like my response to original post, I would suggest that you check out my topic as well..

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