What is the number one symptom you wish would just instantly disappear?
Amanda Osowski Moderator
It's a toss up for me - excruciating abdomnial pain or crippling fatigue. Both invisible, difficult to explain, or get help with.
I would get this awful symptom as well! It's the absolutely worst. You are so right. When you pick at it, it bleeds and removes a layer of skin. Just awful. I would put neosporin and it would help. But honestly, It's not until I would get on steroids that it would go away. So sorry you are dealing with it! -Elizabeth (team member)
I’m with Amanda. It’s the fatigue for me too. Nothing worse than being bed ridden.
The best "big-pharma" commercial for an UC/Crohn's medication is one in which a young lady goes on stage to perform with her band. She picks up the microphone and then abruptly puts it back in the mic stand and walks off stage, holding her lower abdomen - as the band stops playing and looks at each-other, as if to be saying, "WTF???"
I healed by taking corticosteroids and of course I had more flare-ups after that. But that one was the worst. I learned that I should raise my voice and ask for help when I'm in need. Knowing that there are people that understand you and support you is really important specially your doctor. Mine wasn't a supportive doctor. In Iran doctors treat their patients like shit, they speak to you like you're their servant. Experiencing all of these made me stronger emotionally. Ask for help and stay positive friend ♥️
It is just as much, an affliction - of the mind, as it is - of the gut.