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In your opinion, what is the worst symptom of Crohn's or colitis?

What is the number one symptom you wish would just instantly disappear?

  1. It's a toss up for me - excruciating abdomnial pain or crippling fatigue. Both invisible, difficult to explain, or get help with.


    Great question !

    1. I’m with Amanda. It’s the fatigue for me too. Nothing worse than being bed ridden.

      1. , You've got that right! Thanks for sharing - Pam (team member)

    2. , The number one symptom I wish would just instantly disappear is the lack of will to survive or, do anything I'm passionate about. It's almost as if I've been fluoridated, like I am a prisoner in a Nazi encampment, and the will to fight and survive is not even in my nature any longer.
      The best "big-pharma" commercial for an UC/Crohn's medication is one in which a young lady goes on stage to perform with her band. She picks up the microphone and then abruptly puts it back in the mic stand and walks off stage, holding her lower abdomen - as the band stops playing and looks at each-other, as if to be saying, "WTF???"

      1. , I completely feel your pain, but please know that you have a will to survive every day! Despite not feeling well, there are plenty of reasons to get out of bed in the morning and make each day better than the last. And, if nothing else drives you, please maintain hope--hope that science will continue to improve to develop a treatment plan for you that works and that your symptoms will become mild or just go away.
        You have a whole community here that is pulling for you and I hope you can see the beauty in life and the magic you add to it just for being in it. Sending hugs!

        --Julie (Team Member)

    3. It is just as much, an affliction - of the mind, as it is - of the gut.

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