Hi, I had a panproctocolectomy in May 2023 so everything removed and a permanent stoma. I’d had an internal pouch which never really worked and had developed lots of fistula’s. I had hoped that the surgery would see the end of fistula’s and all the pain and discharge that comes with them but unfortunately the situation has just gone gradually downhill. I’m currently on infliximab, fourth infusion later in July. I keep getting abscesses that build up and then burst becoming another fistula. Had loads of MRI scans, loads of visits to day consultations, loads of antibiotics but never any improvement. I’d really appreciate any positive good news stories from anyone who has been where I am. I know we’re all different but I need some encouragement and support to get through this. I have a great job, work really hard, very rarely have any time off. Nobody at work knows the pain I’m in, just feels like a constant struggle and need to know there might be light at the and of the tunnel!