Been on Remicade for about 3 months for UC-looking for others feedbackI have moved onto Remicade after failed experiences with Humira, Entivio, and Rinvoq for my treatment of UC! (got blood clots from Rinvoq) I am now on Remicade for about...Reactions0reactionsComments4 repliesLiving with Ulcerative ColitisLesser Known SymptomsSide Effects
What are some real suggestions on how to cope with severe ArthalgiaNA...Reactions0reactionsComments1 repliesLesser Known SymptomsLiving with Crohn's DiseaseTips & Advice
Crohns fistula’s and complications Hi, I had a panproctocolectomy in May 2023 so everything removed and a permanent stoma. I’d had an internal pouch which never really worked and had developed lots of fistula’s...Reactions0reactionsComments4 repliesCopingSurgeryLesser Known Symptoms
Suspected CrohnsHi everyone, so in 2019 I had a colonoscopy where inflammation and a superficial ulcer in terminal ileum was found. The dr said it was suggestive of crohns. A couple...Reactions0reactionsComments2 repliesLiving with Crohn's DiseaseLesser Known SymptomsTips & Advice
Never been properly diagnosed….I’m feeling fed up… I believe I’m having a flare up as it seems to be similar symptoms each time but the consultant is never really much help. Abit of...Reactions0reactionsComments8 repliesSymptomsLesser Known SymptomsDiagnosis
Have friends that accept your illnessI am a Chron’s patient on Remicade. Got my ist UTI never had before has anyone else had this problem...Reactions0reactionsComments1 repliesLesser Known Symptoms
IBD and libidoCan IBD cause a low libido? Just curious if anyone has experienced low libido from their IBD. I have had this ongoing issue for awhile and doctors have been unable...Reactions0reactionsComments15 repliesLesser Known Symptoms
Anyone had a panproctocolectomy?Had it in March. Having the rectal wound re-opened as its healing wrong. Anyone know approx healing time? Been housebound since end of February. Crohns has returned too presenting via...Reactions0reactionsComments8 repliesLesser Known SymptomsCopingSurgery
Help please Mixed connective tissue, raynauds, ibd, tried all types meds,gluten,dairy wheat and pulse free not constipated nor runs, but urgency for loo asap or I'd have a problem. Persistent left sided...Reactions0reactionsComments2 repliesLesser Known SymptomsSymptomsDiagnosis
Strange 'pumped muscles' sensations? Hi all, hope you're all doing well! Ever since being diagnosed with crohn's I've had a peculiar thing where when I do something repetitive with my body, the muscles I'm...Reactions0reactionsComments5 repliesLesser Known SymptomsLiving with Crohn's DiseaseTips & Advice