Suspected Crohns
Hi everyone, so in 2019 I had a colonoscopy where inflammation and a superficial ulcer in terminal ileum was found. The dr said it was suggestive of crohns. A couple years later I had a capsule endoscopy done and which also found a superficial ulcer in the same area and there was inflammation too, which was suggestive of crohns.
I am now seeing a different dr who believes i might have crohns by looking at my previous results, but he wanted to do his own tests. So today I had a colonoscopy/gastroscopy where no ulcers were found and no inflammation was found in the terminal ileum. But there was some inflammation in the colon, but my dr didnt specify the location. I was given a report that said congested hyperemic peri-appendiceal mucosa and that biopsies were taken. I think this might be the area that is inflamed, but unsure?
My questions are, can superficial ulcers that were previously there heal and no longer be present and if so, can you still have crohns disease without ulcers?
Has anyone experienced inflammation no longer in one location and now in another, yet still have IBD?
I'm so confused and not too sure what to think.
Just to add on, I have had an MRI done which also showed inflammation in the terminal ileum, suggestive of crohns. I have had a CT scan which was normal. CRP always shows inflammation and fecal calprotectin which shows inflammation, but sometimes can be normal.
Symptoms wise, I don't get frequent bloody stools, that is rare for me. But I do get alot of mucus and very soft stool to diarrhoea very often. I also feel very fatigued all the time with stomach pains. I'm not on any medication, but take gastro stop to try and cope with this when I'm out.I am so sorry to hear you are going through this. I know how frustrating it can be trying to find the answers and diagnosis! Thank you for taking the time to share your results with us. I wanted to share this article with you written by one of our health leaders hoping it helps clear up some of your questions https://inflammatoryboweldisease.net/living/emotional-rollercoaster. I also hope others will chime in with their own experiences. Have you had a chance to reach out to your doctor and discuss the results with them? If not, I would suggest calling or making an appointment and sitting down to discuss all your questions! Sending thoughts your way. Warmly, Erin (team member)
