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Azathioprine when introduced into Remicade infusion plan.

Hi All,
Just looking for some feedback if anyone has some. I have been on Remicade for about 1 year. I have for sure had some very positive results related to my symptoms. Getting the right balance timing dosage and timing on the medication is still a work in progress. About 4 months ago, I started to develop anti bodies counter acting the effectiveness of the Remicade. My Dr has put me on Azathioprine to tamp down the antibodies. I know its reported side effects can be nausea, slight light headed/dizziness, and some pretty good muscle/joint pain. I only really started noticing this as my dosage has been increased. Has anyone experienced strong bouts of these side effects? They kind of sneak up on me and wasn't sure if others experience this. Every day with this is an adventure for sure. Thanks to anyone who can share experiences.

  1. Hello, , I hope some of our community members with experience on Azathioprine can share with you here. I do know that we have had people here who have been on it, so I'm crossing my fingers that they see your post here and let you know how the side effects were (or have been) for them.

    I did want to share this article with you. The author wrote about her experience on Remicade and Azathioprine and making sure to get yearly skin checks, https://inflammatoryboweldisease.net/living/annual-skin-check.

    In addition to reaching out here, have you been able to talk with your doctor about the increase in side effects as your dosage increases? I'm wondering if it's possible there is something else you can try, if the side effects are too much to manage. Obviously, only your doctor can tell you for certain, but it might not hurt to reach out to them, if you haven't already.

    Please, if you're comfortable, keep us posted. Sending you gentle hugs. -- Warmly, Christine (Team Member)

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