Crohns. 24 7 pain
Diagnosed in 2019...30 cm of small bowel and 10 cm of large bowel removed due to a stricture...entyvio every 2 months....up and down with severity of flare ups......constant joint pain all the time and weight gain....purposely didnt eat for 2 days between dr appointments and i gained weight...permanent a fib and exhaustion every day....tired of being in pain all the time....its to the point that every single joint hurts and every activity hurts and sucks the life out of me....out of ideas...im told ive had crohns my whole life....its starting to beat me down...is joint pain a side effect or am i losing my mind?
Hi
, I'm so sorry to hear of all the pain you're experiencing 🙁 You absolutely are not losing your mind and you certainly are not alone in feeling this way. Unfortunately joint pain is one of those symptoms that is common with Crohn's.. however, most people are unaware that they're related! Have you discussed this joint pain with your doctor? I wanted to include some forum threads and articles that you might find interesting:
https://inflammatoryboweldisease.net/forums/please-explain-joint-pain
https://inflammatoryboweldisease.net/symptoms/inflammation-of-the-joints-skin-and-eyes
https://inflammatoryboweldisease.net/spotlight/ibd-surprising-symptoms
https://inflammatoryboweldisease.net/clinical/ibd-pain-cause-impact
Will you keep us updated on how you're doing? Please know we're all here for you! Sending strength - Pam (team member)
joint pain is definitely a symptom of IBD for some people. It would be worth trying to get an appointment to see a Rheumatologist.
~ Sahara (Team member)
in my case joint pain was my first symptom that something was wrong, I was 15. What was worst is that my parents and guardians didn't believe me. As I type this I feel like the bones in my hands and arms feel like heavy cinder blocks thats being sanded down.... I have a seronegative spongylarpathy(inflammatory arthritis) and it affects my hips and spine the worst. I have found that the epidural spinal injections help but I haven't had lasting relief, the humira my doctor's prescribe isn't working and if anything made my joint pain worst. Waiting to be switched to remacaid
