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Crohn's why

Just been diagnosed with Crohn's and it being so hard
Hard because no one around me just understand
Tiring because how do I have to explain to people why my drug are so expensive for just diarrhea and fatigue
Hard because how do I have to relate joint ache skin ulcers and others to just my stomach
Much harder having autoimmune disease without a treatment
Everyday just hoping I won't slump because why me
Hoping remission period last every longer but nope that never seems to come
Crohn's why

  1. my heart goes out to you. I know how difficult it can be learning about a new diagnosis especially one that is so hard for others to understand just how debilitating it can be. I want you to know we get it here. You did a wonderful job putting into words how you are feeling. I wanted to share this article with you and hope you know we are here for you and reach out if you ever need anything. Even if it's just to vent! Sending thoughts your way. Warmly, Erin (team member)

    1. I'm sorry you have been diagnosed. Crohn's is not an easy journey but it can be manageable. I was diagnosed back in 2011 and I will say, and this not to discourage you, it took me many years to get to where I am at today, but I am pain free and able to function day to day fairly well. Everyday I am improving and I am also getting smarter and doing my own research and learning about new ways to heal. Are you currently flaring? And are you currently under and treatment or care by a GI? That is definitely a great place to start if you haven't already done so. Next I would take a look at diet and lifestyle. -Elizabeth (team member)

      1. Currently flaring
        Under a Gi but treatment fee feels so high and it has made me miss couple of appointments

        1. Hi . Yes, as you can see from 's response, people here understand what you are saying about the cost of IBD care. I do want to share with you this article from our editorial team on managing healthcare costs: In addition, this article offers more information on patient financial assistance programs: Hope this information is helpful. Best, Richard (Team Member)

        2. Hi , I just saw your comment about feeling okay when you don't eat and it reminded me of this article from our health leader, "When Food is the Enemy", You definitely aren't alone in finding it difficult to finding "safe" foods, especially when it feels like that is always changing. Please know that this community is here for you! -- Warmly, Christine (Team Member)

      2. Sorry to hear about your diagnosis and the fact you are struggling right now. I can honestly say we have all been there and you will get through it and it will eventually get better with medication and/or diet control. I get how others do not understand and I eventually stopped trying to explain it to people. I hated that no one had any sympathy and they figured they knew what was best and I should try this and that...ugh.
        I went to a very dark place after diagnosis, after struggling and having many surgeries, but I got through it and so will you. Nowadays there are so many great meds and biologics to help. Try and keep a food/drink diary to figure out what to avoid to help with your symptoms.
        We are here for you if needed and I hope you get the help you need.
        Vern - IBD Team Member

        1. Anytime. You can message anyone anytime as well if you wish.

        2. Hi . Just to follow up on the excellent information from Vern, another patient leader, Jenna, wrote here about keeping a food diary: and our editorial team created this downloadable food journal: Wishing you the best. Richard (Team Member)

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