Day after iron infusion
Hi everyone! I was just wondering how you feel the day after an iron infusion? I feel tired, nauseous and my stomach is a bit queasy. I thought I was supposed to feel energised and great afterwards? Feeling a bit frustrated, as before I had the iron infusion yesterday, I was feeling much better in general.
Many thanks ❤️
HI Cara. I hear you. It can be so frustrating to feel like you did something to make matters worse. I have a very unique experience with iron infusions. I have had many throughout my Crohn's journey.
Ultimately I came to the conclusion that they aren't for me. Not to discourage you at all because we all react differently. But in my case, I would get ill afterwards. And sometimes immediately after or during the infusion. Stomach ache, nausea, bad fatigue. Just overall feeling of feeling off and ill. I would even throw up sometimes.
So, just letting you know you aren't alone in feeling these symptoms. I would suggest resting as much as you can and taking it easy. Perhaps in a couple of days your body will process the load and you will feel better.
Sorry you are feeling badly.
Hugs, Elizabeth (team member)Hi Elizabeth just one more question, how long after your iron infusion did it take you to recover from your symptoms/side effects? Many thanks ❤️
Thank you so much for sharing your experience, we literally sound like the same person in a lot of ways! ❤️
Hi
. While reactions to iron infusions are rare, they definitely do occur. According to this study nausea is the most common reaction and occurs in just under 3% of patients: https://www.royalberkshire.nhs.uk/media/vr0jgjwy/iron-infusion-risks-and-side-effects_jun22.pdf. It is important to make sure to tell your doctor about this reaction, especially so it can be reported to the FDA adverse event system. Also, you can read more about Elizabeth's experience with an iron reaction in this article she wrote on the event: https://inflammatoryboweldisease.net/living/iron-infusion-reaction. Best, Richard (Team Member) I used to feel great after an Iron infusion, but lately, since they changed what kind of med I get, I really can't tell the difference! Treatments used to take 1 1/2 hours at most, now they do a faster one that pumps it straight from the syringe and takes 1/2 hour. Trouble is, I'm also on a new Crohn's med, and when I ask it that had something to do with it, I'm practically laughed at. I was doing fine on iron when I was on Humira, but now with Skyrizi, the med just doesn't seem to stay in my system. I did read where Skyrizi can cause lower red blood cells, but no one takes me seriously.
It's not just you--everyone is different, taking other meds, other complications.Hi
. You are correct that one of the most common side effects of Skyrizi for those with Crohn's is low red blood cell count/anemia (see: https://inflammatoryboweldisease.net/treatment/medications/skyrizi). I can't say if this has anything to do with the difference (or lack thereof) following your infusion, but your concerns certainly deserve to be heard. If you feel that your doctors are not listening or taking your concerns seriously, know that you are always entitled to another opinion. Hopefully others will chime in with their experiences on iron infusions and Skyrizi. Best, Richard (Team Member)
