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Early onset colitis 5 year old boy

Hello everyone, hope you are all doing well.

My son was diagnosed with stage 3 early on set colitis, pan colitis and he was 3 years old turning 4 at the time
Ever scince it has been a challenge and difficult time learning about his ibd and going through all sorts of medicines and hospitalisations.

Just wondering if there are any parents who have children with ulceritive colitis or early onset colitis that could possibly give me any useful advise on how they make thier child's life better quality at home and at school.

Also any adults who could advise on what they do to make things easier


  1. Hi , thank you so much for reaching out. I can't imagine what you've all been through since your son's diagnosis. 3 years old is such a young age and my heart really feels for you and your entire family! I know there are many caregivers here, so I hope they will chime in with some personal experiences or advice for you. Please know we're thinking of you and your son <3 Sending hugs - Pam (team member)

    1. Hi Pam, thankyou for your kind words and support. It has been difficult but it is a big relief knowing we are not in this alone. I do hope so that would be great.
      Thanks again Pam ♡

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