I'm so sorry you are going through this and with your son diagnosed so young! My son was 12 when he was diagnosed with severe sudden onset Crohn's. It's been a hard road at times, but he is in remission and doing wonderfully well now. I'm not sure how old your son is now or how long he's been getting treatment, but my first bit of advice would be to make sure you have a doctor you trust who is a true partner in this journey. Switching to a doctor more aligned with our needs and values made such a difference. And make sure you have a support system--whatever that may look like for you: other parents of kids with IBD were a huge help for me. As far as school, I wrote a letter detailing my son's illness and how it might affect his ability to attend school and to focus on his work. This helped avoid having to have the same conversations over and over. And I gave them some pamphlets with the basics from a local Crohn's and Colitis organization. Oh--and a communication log so I could see how he did at school each day and vice versa. Try to take care of yourself, too, as hard as that might be at times. Getting a decent night's sleep was vital for my ability to function. Hope this helps a bit. Wishing you and your son all the best.