I have just found this forum when googling for some support. I was diagnosed with IBD during the first lockdown. After a colonoscopy and an mri they are still unable to tell me what I have as I am showing symptoms of both Chrons and UC.
On Monday I started EEN feeding so far tolerating the drinks so haven’t needed a tube. Looking for success stories? How did people feel and how long till you felt okay on it? Did anyone have any side effects?
So far I have been very up and down. I am not struggling with not eating, I want to but it’s not been a problem. I feel crap, very teary sometimes I just feel like I want to lie down but I can’t as I’m at work. I have had a really sore back since yesterday and read this could be dehydration but obviously not sure.
I’m not due to speak to anyone until 2 weeks time for a review.
Any experience or advice would be greatly appreciated as I am struggling so much.