Hi . I am so sorry you are going through this. I have had similar experiences in the past, and I definitely recommend talking to your doctor about it. For me, it has been caused by a few different things since diagnosis. I have a benign cyst on one of my ovaries that we think may be the cause of some of my current pain during sex. In the past prior to surgery I had excruciating pain due to an internal fistula that was forming between sections of my large intestine. It is hard to pinpoint specific pain triggers when we are in general pain all the time, but hopefully talking to your doctor/gynecologist can help point you in the right direction! This disease can make things so much more complicated, and I hope you find relief so you can have fun instead of be in pain.
Wishing you the best,
Natali (team member)