Has anyone been misdiagnosed?
Over the last 3 months, I've gone through having severe stomach pain, nausea, constipation, diarrhea, a non stop fever, mucus and blood in stool, and I lost close to 20 pounds in the first month. My first doctor told me that it couldn't be IBS because IBS doesn't cause fevers, so he gives me some medicine and sends me off. The medicine didn't work, and so he referred me to a specialist. The specialist did a CT scan, Colonoscopy, and Endoscopy both with taking biopsies. After the Colonoscopy and Endoscopy, he mentions to my parents (I'm only 17 so everything went through my parents) that he thinks I could have Ulcerative Colitis because he found 4 ulcers in my colon but he'd have to wait for the biopsies to come back. So a week later, I go to my checkup, and he says that he doesn't have enough evidence to prove its IBD, so he diagnosed me with GERD, IBS, a food allergy (doesn't even know which foods) and other "stress related stomach issues. " So he gave me medicine for the GERD even though I don't have symptoms of that, and it hasn't helped at all. I'm still in pain, still have the other symptoms I listed off above. All of this has really affected my life. Completely messed up school for me, and so my question is, is it possible that I have IBD? None of this adds up to me, and nothing he's told me to do that'll help has helped, so I feel like something is missing.
It is certainly possible. I would get a second opinion from a GI. Did you have bloodwork done? Also it could be possible that you may have issues in your small intestine. A colonoscopy only shows the large intestine. Could be something to look into. The test that shows the small intestine is a Pill Cam Test. It's very easy, I had it done. You swallow a small pill that has a camera in it and then it comes out in your stool. -Elizabeth (team member)
I've gotten a blood test maybe 3 times and they all came back clean. The medicine my doctor gave me for gerd hasn't worked, and a few days ago, he got me muscle relaxants for the IBS, and that hasn't helped either. Nothing he's having me do is working, and it's getting really annoying having to go through this.
i almost died at six years old due to a misdiagnosis, lost over half my body weight and needed 2 blood transfusions. After speaking to many doctors with no diagnosis, my mum actually asked one of them if it could be Crohn's as a few of my relatives suffer from it. So in short I was basically diagnosed by my mum because the doctors were useless.
I would look into seeing a naturopath! I was undiagnosed for 3 years with horrible symptoms. I have Crohn's and the naturopath for sure saved my life!! Even now (almost 15 years later) I'm considered moving away from my medication im currently on for Crohn's and using more natural ways to treat it.hey a fellow 17 year old here. i am sorry but just got to get this fustiration out of me. 1st. any doctor that just prescribes medications with no valid proof of knowing that is what is wrong is incompetent. 2nd when will it get through doctors heads that its been proven negative blood work DOES NOT mean end all no ibd negitive colonoscopies, endoscopies biopsies and mri's maybe but that still doesnt warrent saying there is no valid proof if anything keep looking and form a stronger conclusion. 3rd i think that ulcers is enough of a reason to get a second opinion which is okay to do. 4rth dont give up it is gonna be a tough road ngl but keep fighting even if that means getting more testing or switching doctors. keep in mind that you are the paitent and have rights that can never be taken away.
now i am done. i am sorry you have to go through this. i hope that there is some clarity that comes your way.
leah
