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Home Health Infusions

Hi all!

Wondering if any of you on infusion medications receive regular home infusions instead of at the hospital or an infusion center. I have previously done both (hospital and infusion center) but during the pandemic I have arranged to receive Remicade at home. I was wondering if you had experiences with this that you'd mine sharing including your perceived pros and cons. I had my first home infusion on Friday and it went well, but I'm conflicted about where to advocate to get infusions post-pandemic.

Thanks!
Amanda (team member)

  1. I started on home biology high tech shots. But due to the state I was in after 4 weeks in I.C.U 12 days life support after emergency surgery. I went from monthly fortnight to weekly I got first fusion 3 days on feeling alot better

    1. So glad to hear you are feeling better. You have been through a lot. -Elizabeth (team member)

    2. thanks ur very kind im honesty lucky iv alot to live for always someone worse off somewhere thanks again hope ur feeling good

  2. Any questions no question to small il try my hardest to help

    1. I started off with hospital infusions after I was first diagnosed and started receiving Remicade. I certainly enjoyed the hospitality of the nurses, and it was reassuring to know that if anything went wrong, my GI would be around to help. But when my primary insurance started me on at-home care, I can't say I really miss the early morning drive to the hospital now, especially for the low cost of having a pole and biowaste container in my room! I enjoy getting the same treatment now in the comfort of my home.

      The only real issue I have had is with the insurance companies (shocking I know). While my primary wants home care, my secondary does not see the need for it and it has been a headache getting them to agree on the details. I wonder if anyone else has had such difficulties?

      1. I'm so glad that you've had positive experiences, both with hospital infusions and at home. Unfortunately, as you point out, insurance companies can really make things difficult. I can see how it would be especially challenging if your secondary isn't on board with what your primary wants. I hope any of our community members with similar experiences chime in here. Has there been any progress since you originally posted your comment? -- Warmly, Christine (Team Member)

      2. Hi . It is interesting that the two insurance providers disagree. My understanding has been that it can actually be cheaper for them to cover the at home infusion because, as you mentioned, the doctor is available in the office which means they can charge for that. As opposed to the at home where they can charge for the tech. One would think that the primary insurance would win the day, as the primary payer. If you do have to write an appeal letter to the secondary insurer, I can tell you that it has helped my wife, Kelly (who has a severe form of a different autoimmune disease), to note if there is an added expense for a different form of treatment (in this case the doctor being present). Please feel free to keep us posted on how things are going. Wishing you the best. Richard (Team Member)

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